Tuesday, 19 October 2021

Statement about my pain and what I have to go through every day

 As it is difficult to give everyone all the bits of information they need. I have created website called www.nomoreendo.com. It has all of my documents and pictures on there from the past year and 10 months. There is a link at the bottom of each post where you can download the documents you want.

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This statement is being sent to Universal Credits, PIP, St Stephens Surgery, Miss D Ghosh, Royal College of Obstetricians and Gynaecologists.

 

Statement for UC about my pain and what I have to go through every day.

 

Q1) I did ask you in my recent letter to Universal Credits, for a copy of all of my notes and discussions you have had that helped you come to this decision.

Q2) I would like a copy of my full assessment report and would like to request a written explanation as well please.

 

Both me and my partner agrees that I am slowly going back to the way I was back before my first operation last September. As I am sitting talking to my partner and going through all my old notes. I have realised how much my health as gone downhill over the past year and a half.

I am constantly bed bound every day. Everyday my partner brings me coffees, teas and food up to me in bed. I always eat my meals in bed. It is very rare I eat my meals downstairs at the dining room table. I am always using my hot water bottle, which my partner refills fore me all the time, when I ask him to.

My partner has always made sure I have got everything I need in my bedroom and that it is at easy reach for me, so I don’t have to stretch up and hurt myself.

I still wakes up at night sometimes in chronic pain. I have to wake my partner up by a text as I cannot walk to the other bedroom due to the pain. My partner empties my pee jug and does my hot water bottle. I have to take at least 2 Tramadol’s in the night to help ease the pain and to try to get back to sleep. I have trouble most nights getting back to sleep, even when I am really tired because the pain is so bad and its makes me uncomfortable to lie down. Sometimes when I have to pee in my jug I have to hold on to the side of the surface for support.

I am excruciating pain every morning when I wake up. I have to take Tramadol and a Paracetamol within the first half an hour of waking up in the morning. My partner empties my pee jug, does my hot water bottle and makes me a cup of coffee every morning.

My partner gives me a damp cloth every morning after he showered, for me to use, as I struggle to bath or shower every day. I mostly have a bath as I cannot stand in the shower for too long. I have a bath once maybe twice a week.

I am always have to use my crutches to get around the house. I walk very slowly taking tiny steps. I walk with a limp. I suffer so much pain while I am walking around the house. Sometimes when the pain is really bad I walk like an old lady hunched over in pain. I have to take the stairs one step at a time. Holding on to the bannister or the wall while I am walking up or down them. Every time I am up and about I am always holding my belly.

My right side abdomen has been very painful again lately. I have problems bending over, sometimes I can’t and I have to get my partner to help me, e.g. pulling up my knickers or picking up something off the floor. I cannot kneel down at all or go on my hands or knees.

Me and my partner hardly ever have sexual intercourse. When we do it not for long as I suffer so much pain afterwards.

I am now slowly going back to taking at least 5 Tramadol a day again.

Both me and my partner have noticed that my eating habits have gone down again. I am not eat as much as I used.

I suffer excruciating pain in my abdomen while I am having a bowel movement. I have been bleeding on and off since July, but these past couple of weeks I have hardly bled at all.

I don’t go out at all now. If and when I do go out I always to go in my mother-in-law’s car and we have to go somewhere where I can sit down and rest as I cannot walk very far.

I suffer after getting my son ready and dressed for school every morning. I don’t take my son to school or pick him up. My partner has to do that. My son always ask me to walk with him to school but I have to tell him I can’t as I cannot handle the walk. The time I had walked to school because of a meeting me and partner had to go to, I was bed bound for at least 3 days in excruciating pain, waking up each night as well.

I hardly ever play with my son. When I do, I always end up in pain and bed bound for days afterwards. I don’t feel like a mother at all to my son because I am always resting in bed. It upsets me when I have to tell my son that I cannot do things with him because I am in pain. It upsets me when I see him upset and he walks away sad. He even says he is sad now. I cannot pick my son up at all.

I have to sit with my son on my bed when I am helping him with his homework every night, as I cannot sit at the dining room table for too long.

If I do go downstairs for bit, it is not for long, then I am back upstairs in bed resting. I cannot sit or stand for too long. It is very uncomfortable for me to rest on the sofa. I have to come upstairs soon after my son and partner comes home from school, as I suffer in so much pain from sitting and relaxing on the sofa, even just for a few minutes. When my dad comes over on a Friday night, I always makes sure I got my hot water bottle with me when I go downstairs to talk to him for the evening. Sometimes I do have to go up to rest in bed because I am in so much pain or my dad leaves early so I can go and rest. I sometimes go downstairs when my mother-in-law comes over, but after a while I do have to go up and rest in bed due to the pain. Most of the time when she does come I have to stay resting in bed because of the amount of pain I am in. This also happens when we have our friend over on a Thursday afternoon.

I suffer a lot of excruciating stabbing pains all across my abdomen and belly every night when I am getting myself ready for bed. The pain carries on when I am settled in bed for the night. My partner always has to do my hot water bottle. I have to take a Tramadol, Paracetamol and an Ibuprofen as soon as I am in bed.

I have noticed that the past few weeks I get very angry with my partner and son when I am suffering in so much pain. Its not mine or their fault that I am suffering so much. For some reason when I am really suffering in pain I just lash out at them for no reason what so ever.

My partner has to do all the housework and cooking. If I try and do it I always suffer in chronic pain afterwards and I am bed bound for days. Activities around the house is very hard for me to do, so I just don’t do them. My partner goes to town on his own to get, Toiletries, Gas and Electric, my Tramadol Prescription, and other essentials. My mother-in-law does our food shopping for us twice a week so my partner doesn’t have to leave me alone with my son as I don’t think I could cope.

I would like you to know as I am typing this you I am in excruciating pain just from sitting down in a chair for as long as I have and that will be bed bound for the rest of the day. This is another example of how I am suffering.

Both me and my partner are happy to go along with the specialist’s advice, on waiting till the 4 months are up before going on to the next step or making the next decision about my health.

 

I would like to give you more detail on my health, but as you have not given me a way to upload documents or pictures to your site, I have had to put them on my website we have made to do with my ongoing health problems, at www.nomoreendo.com.

 

I have put links in below for you to go straight to each subject matter. Please use the web links and the information in them as part of my information I am giving to you, and you need to know about.

As you read and look through each link you will get a much clearer view on my health and my ability.

 

There is a witness statement made by my mother in law in which she explains how my situation. My mother in laws statement
http://healingemma.blogspot.com/2021/10/emmas-mother-in-law-statement_17.html

 

There is also a part of my diary which is dated from the 1st October to 15th October 2021. In there I explain how many Tramadol I am taking a day and at what times. I also explain on what my partner does me day by day. It is exactly how my life is day by day and how it is never changed because I am bed bound all the time. If you want to see more from this year please ask.
Pain Diary dated 1st October to 15th October 2021
http://healingemma.blogspot.com/2021/10/emmas-pain-diary-1st-october-to-15th.html

 

There is the letter that me and my partner sent to you recently. There is also a letter which my partner has sent to the Royal College of Obstetricians and Gynaecologists explaining his views on my Endometriosis diagnosis.
Stuart’s letter to Royal College of Obstetricians and Gynaecologists
http://healingemma.blogspot.com/2021/10/letter-to-royal-college-of.html

 

Stuart’s Last Notes sent to UC
https://healingemma.blogspot.com/2021/10/hi-uc.html

 

Emma’s Last Notes sent to UC
https://healingemma.blogspot.com/2021/10/emmasstatement-to-uc-about-my-current.html

 

There is a list of my Tramadol Prescriptions dated back from the 20th April 2020 to the present day.  I get 60 Tramadol every time. It shows how many times my partner Stuart as gone to the chemist to get them for me. He also picks up Paracetamol and Ibuprofen for me at the same time.
http://healingemma.blogspot.com/2021/10/emmas-prescriptions-from-chemist.html

 

There is pictures of what my belly looks like now after 5 years of having a C-section, Ectopic Pregnancy and 2 keyholes surgeries to do with my Endometriosis. It shows how my belly has never gone down and how it still looks like I am pregnant. I am constantly in pain all across my abdomen and belly. Pictures of My belly.
http://healingemma.blogspot.com/2021/10/pics-of-my-endo-belly.html

 

There is the 2 letters that I sent to my specialists after my operation back in June. Detailing my current situation, pains and the bleeding. The first one she did not responded to. The second one was sent because I was suffering even more in pain and was still bleeding 2 months on since I started back in July.
http://healingemma.blogspot.com/2021/08/letter-to-miss-d-ghosh.html

http://healingemma.blogspot.com/2021/09/letter-to-miss-d-ghosh.html

 

If you would like any of these documents in paper form please let me know and I will get my partner to bring them in for you.

Thank you for your Co-operation in this matter and hope to hear from you soon.Mrs Emma Goode, 35 Archer Road, Redditch B98 8DN, 07383109492, 21/02/1990, emmasmith90@yahoo.com

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Sunday, 17 October 2021

Emma’s Mother-in-Law Statement

This is statement from my Mother-in-Law from her perspective of my situation. She explains how I am still suffering after having my operation back in June. She also explains how my partner Stuart still doing everything for me as I am still not capable of looking after myself probably on a daily basis. She also does our food shopping 2 times a week to help us out.

She is very concerned about how I will never get back to the way I was before all of this has started and that probably the only thing that will help is to have an Hysterectomy, which is what I have been asking for from day one.

Emma’s  Mother-in-Law Statement

Although Emma had surgery to cut out much of the endometriosis she did not recover much – by the time she was recovering from the surgery it seems likely the endometriosis had grown again.

Emma has never recovered enough to walk without a crutch.   She is unable to take anything more than the shortest walk and is virtually house bound.

The only time she can get out is in my car as the family to not have a car and even in the car, she can only be taken somewhere she can sit. In 2021 she has been once to my house and twice to her son’s school by car.  On two occasions she has tried to walk to the school (about 15 minutes’ walk) and the effort has left her in severe pain for days.

Emma is not able to care for herself and struggles with any sort of household task.   Stuart has to complete all the household duties and take John to and from school.

I do the shopping for the family twice a week and take to the food house as Emma does not like to be left too long and is unable to care for herself when her pain is severe.

It seems likely that it will be years rather than months before she is eventually given the surgery that will alleviate the condition, i.e. a hysterectomy.   Until then she will be housebound and walking with crutches.

I am Emma’s partner’s mother and John’s grandmother.

Oonagh Morris

[[  address removed  ]]


Saturday, 16 October 2021

Pics of my Endo Belly











These are photos of my belly. This is what my belly looks like now after having a C-section, Ectopic Pregnancy and 2 surgeries to do with my Endometriosis. 

As you can see my belly has never gone down and it always look like I am pregnant. I am constantly in pain all across my belly and abdomen.

My Tramadol Prescriptions from the Chemist

This list below is the amount of times my partner Stuart has gone to the Chemist to pay and collect my Tramadol. I have 60 Tramadol every time. He also gets me Paracetamol and Ibuprofen at the same time.

This list is dated from 20th April 2020 to the present day. My partner used to go to the Chemist every 2 weeks for my Tramadol. It did ease bit after my operation back in June but it is now slowly going back to every 2 weeks.

This is never going to stop happening as I am in constant need for my Tramadol to help with my constant pains that I suffer every day.


Date                 Description                         Debit

20/04/2020 LLOYDS PHARMACY         9.15
28/04/2020 LLOYDS PHARMACY         18.3
11/05/2020 LLOYDS PHARMACY         9.15
21/05/2020 LLOYDS PHARMACY         9.15
02/06/2020 LLOYDS PHARMACY         9.15
26/06/2020 LLOYDS PHARMACY         9.15
29/06/2020 LLOYDS PHARMACY         9.15
16/07/2020 LLOYDS PHARMACY         18.3
30/07/2020 LLOYDS PHARMACY         14.14
03/08/2020 LLOYDS PHARMACY         18.3
11/08/2020 LLOYDS PHARMACY         9.15
24/08/2020 LLOYDS PHARMACY         9.15
27/08/2020 LLOYDS PHARMACY         9.15
14/09/2020 LLOYDS PHARMACY         9.15
08/10/2020 LLOYDS PHARMACY         9.15
22/10/2020 LLOYDS PHARMACY         18.3
26/10/2020 LLOYDS PHARMACY         9.15
10/11/2020 LLOYDS PHARMACY         11.15
30/11/2020 LLOYDS PHARMACY         11.15
15/12/2020 LLOYDS PHARMACY         11.15
31/12/2020 LLOYDS PHARMACY         12.94
15/01/2021 LLOYDS PHARMACY         13.14
01/02/2021 LLOYDS PHARMACY         15.62
15/02/2021 LLOYDS PHARMACY         9.15
15/02/2021 LLOYDS PHARMACY         12.47
01/03/2021 LLOYDS PHARMACY         18.62
15/03/2021 LLOYDS PHARMACY         13.15
29/03/2021 LLOYDS PHARMACY         18.62
15/04/2021 LLOYDS PHARMACY         19.31
29/04/2021 LLOYDS PHARMACY         18.06
11/05/2021 LLOYDS PHARMACY         22.55
07/06/2021 LLOYDS PHARMACY         10.85
21/06/2021 LLOYDS PHARMACY         17.33
05/07/2021 LLOYDS PHARMACY         16.53
11/08/2021 LLOYDS PHARMACY         18.82
26/08/2021 LLOYDS PHARMACY         7.98
03/09/2021 LLOYDS PHARMACY         18.34
24/09/2021 LLOYDS PHARMACY         14.13
15/10/2021 LLOYDS PHARMACY         11.84

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Friday, 15 October 2021

Letter to Royal College of Obstetricians and Gynaecologists

Below is a letter my partner Stuart recently sent to the Royal College of Obstetricians and Gynaecologists, about the the diagnosis I was given called Endometriosis and how it is effecting me. He also talks about how it effects other in women in the world and does it really need to.

From: James stuart morris, 
35 Archer Road, 
Redditch, 
B98 8DN,
email: jsm_smstudios@yahoo.co.uk

To: Royal College of Obstetricians and Gynaecologists, 
10-18, Union St,   
London SE1 1SZ


Dear Sirs/Madams

with reference to my dear beloved English common law wife named emma jane Goode, who is still suffering with a diagnosed condition termed as ‘ENDOMETRIOSIS’ after her Laparoscopic Surgery about 4months ago, I am asking your association to take into consideration the following statement made by myself, while taking into account your RCOG mission statement online as referenced below for your convenience…

‘’The Royal College of Obstetricians and Gynaecologists (RCOG) works to improve health care for women everywhere, by setting standards for clinical practice, providing doctors with training and lifelong learning, and advocating for women’s health care worldwide.’’

I want this to be made public and I want this to be heard by the right people so if you are not the right people to send this to please tell me who is, and supply all their addresses so I can mail them too thank you…


MY STATEMENT

It is my belief and my opinion that my gorgeous girlfriend Emma may be suffering as a consequence of ectopic pregnancy, keyhole, or c section. Statistics may eventually lead us to conclude that there could be a link between severe abdominal pains and invasive surgeries similar to key hole or c section…

The term ‘endometriosis may eventually be realised, as a catchall for a collection of conditions that were mistakenly given at the time of diagnosis…

Politely put, I am worried in case we may be causing long term damage to thousands, perhaps even millions of unaware, ill-informed, un-intentionally injured women, by procedures, that may not have been statistically researched, investigated, or analysed, to such a degree, so as to deliver a suitable, informative, sound, judgement or outcome…

Simply put – I’m scared to death we are hurting all these women without even knowing it…

 If I need to send this to anyone else, please please please let me know, with names and addresses, so me and emma, can help get emma better again, and maybe even help all the others suffering too. All the very best to all of you and thank you for taking the time to read this… 


Stu and Emma…
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Thursday, 14 October 2021

Stu letter to UC

Below is a letter from my partner Stuart to the Universal Credits about his view on my current situation and how they have made a big mistake thinking I am fit enough to go back to work, which I am not.

He details how he does everything for me and what he does for me. He also explains how he has to do the housework and look after our son all the time as I am not capable of doing it myself. 

He also talks about how my Tramadol intake is slowly creeping back up again. He also explains how I went out one day to my sons school for a meeting but I was bed bound for 3 days afterwards suffering from the walking.

He also states how in the surgeons letter to us, she says that we have to give it at least 4 months before they can do anything else. Also that he thinks I need an second opinion on my current situation.


 Hi UC.

This is a small update regarding emmas condition, which sadly differs compared to your recent assessment…

Emma has been bed ridden since before the 2 op’s, and to be honest that is still going on up to present day…

Recently (month or so) the tradamol intake is starting to creep up again…

Her symptoms are starting to sound like what she was suffering with before the first op…

In the maybe 3or4 times she went out in the last year or so with my mum, to places where she spends most time on crutches and sitting down in pain, she has come back sore, and suffering for 2 or 3 days after that, which includes being in bed all day, more tablets than usual, getting me up at night to do her pee jug, hot water bottles, tea or coffee, talk, etc...

The one time she went out with me to johns school (about week or so ago) she insisted on being there because we are having issues with john at school. I did not want her to go but she insisted, although I’m now glad she did. emma then spent the next three atleast days in severe and I mean severe pain, didn’t eat as normal, hardly left the bedroom at all, and her sleep was so bad she got me up three nights in a row, and she also had to sleep during the day just to cope with the pain…

I have just read emmas response to you we are putting up, and honestly, from my heart, she is telling the absolute truth. She does need to see a doctor. She also needs to see you so you can visually asses and determine for yourselves. There is no lockdown, so there is no reason at all for emma not to be seen. We will gladly consent to see anyone who thinks they can help her. She still relies heavily on me to do most things, as it was in the beginning of all this to be honest. Honestly, nothing has changed…

I just want uc to know, that I think you may have made an error in judgement, and I feel strongly she is not capable or fit for work. But I will not force the issue, nor will I tell you. You can phone me anytime and ask me what I think. After all I am being paid by you for me to be her carer, and I a also act for and on her behalf when asked to do so. But yet again, I want this to be made very clear, I will only inform when asked to do so, so please, if you want to know more from me, or want to talk to me, then please please do ask. But I believe you have made a big mistake in your assessment, and I just want you to know that, in case it comes to light at a later date. I will be the first to say I told you so. I am sorry if that sounds rude. But someone has made a decision about my emma, that will become detrimental to her health and wellbeing at a later date, and I cant just sit back and not tell you…

 

 When I read the letter from the surgeon before the second op, who I whole heartedly believe did her very best for emma, the letter clearly left me with the very distinct impression that there was less to no guarantees that the procedure would actually work by making emma pain free again. I could tell that they were at least being honest in saying it doesn’t always solve the problem. Well it hasn’t, there has been a slight very short term improvement as in the first op, but she is now started slipping back to the way she was… (just so you know I would have made all documents available to uc but I was asked by yourselves not to post them up due to data protection, even though you have had my full consent to disseminate and read them accordingly). We are not hiding anything. We are not lying to you. We are telling you our absolute truth. Emma is still in a very bad way. And she still needs medical attention. I just think that emmas problem is not what the surgeon thought it was. In other words, I still think there is something else wrong with emma that we have not found yet, and although I haven’t even said this to emma yet, she will read it here for the first time when I show her this, ‘there is something else in emma that needs looking at’…

I think she needs a second opinion. And not because anyone has done emma wrong. Far from it. I am eternally grateful for all the help we have had. And We wouldn’t be together as a family if it weren’t for UCredits. And emma could have died from the eptopic. So I am eternally grateful for all the helpwe have received…

We had decided to just accept the surgeons advice in her letter, and wait until the 4 months are up before we see or speak to anyone again about emmas worsening situation that hasn’t got any better. Its up to UC if you choose to decide something different about my emmas health. But I just want you to know that at the moment I agree with the surgeon.

Please please please remember emma is dyslexic, she has mild speech difficulty, and she doesn’t speak up for herself at times when I want her to. But she has been bullied badly in her school days, and I will not add to her existing ailments by telling her what to do. That would just be more bullying. I will speak to anyone who wants to speak to me about helping my emma, but I will not force myself upon anyone else anymore. If you ask me, I will gladly talk, but I will tell my truth, my whole truth, and nothing but my truth. And on that note, emma is no way near fit for work, not even a maybe. I still cannot see that light at the end of that tunnel. But if anyone choose’s to overturn that decision, I will gladly let you. I will not force my opinion on anyone…

 Actually UC, on writing the above paragraph, and in this very moment, I have just consciously coherently and knowingly decided to make this lecture of mine to the gp and the surgeon and pip and anyone else who may be involved or can help. I have also made the decision that all our details and info are going to be made available publically online for all to read and see…

WHY you ask…

Statistically, if its 1in4 women suffering from this I am going to help them all and make a difference. If its 1in10 women suffering this I am going to help them and make a difference. Whatever the number, my emma is already one too many, and I have listened to enough women now giving their testimonies, to realise there is a problem in our society, and I don’t think we have a fuller understanding of it yet. And by divine grace, if there is something I can do, I want to try…

Maybe there is an underlying cause or symptom of endobelly. Could it be related to the eptopic pregnancy, or could it be to do with the keyhole surgery or c-section. I don’t know.  I am convinced there is more to this than meets the eye. But I know emma isn’t any better. I know she isn’t fit for work. And I know she still needs me to do most things for her…

Its so interesting that to me, as I am writing this, you could say like a diary, it is starting to help me to come up with practical things I can do, that maybe one day, may even help others out there going through the same painful traumatic experience my emma is going through right now every day…

Thankyou thankyou thankyou for everything you have already done UC and sorry for the long lecture here, but I think its actually done as much for me as it will for you in terms of info…

God bless you all, god guide you all, god protect you all…
Peace and blessings…
stu

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Emma Letter to Universal Credits

Below is my letter to the Universal Credits about my current situation and how I think they have made a big mistake on thinking I am fit enough to go back to work which I can tell you here now that I am noway near ready to go back to work or ready to do any kind of work because no matter on what I do I always end up in pain.

I state how I am constantly using my crutches to get about the house. I also explain on how much my Tramadol intake has gone up again recently. I explain how my partner Stuart does everything for me and looks after our son and does all the housework.

I have asked Universal Credits for a copy of my notes which made them come to the decision that I am fit enough to go back to work and what made them come to this conclusion by only evaluating me over the phone and not seeing me in person.


Emma’s Statement to UC about my current situation and why I am not fit enough to go back to work at all.

Both me and Stuart agrees that I am not fit to go to work at all or even fit enough to do any kind of work. You are making a very big mistake on sending me back to work just on what was said over the phone. You cannot just evaluate me over the phone and think that I am fit enough to go back to work. You have not seen me personally and not seen what have I do to get through the day.

We also agree that a doctor should come round and assess me. I will also still be sending you sick notes.

I am still suffering with excruciating crippling stabbing pains all across my abdomen, belly and sometimes in my groin and pelvic. I am constantly resting in my bed all day every day with my hot water bottle.

I constantly have use my crutches to walk and move about the house.

I am relying on Stuart to do stuff for me all the time (e.g. emptying my pee jug hot water bottle day and night) and he also has to do all the housework. Stuart also looks after our son all the time as I am not capable of looking after him on my own. None of this has changed.

I am having to take at least 2 Tramadol’s just to keep the pain at bay. My Tramadol intake has gone up to 5 a day this past week, and seems to be creeping up again.

I would like a copy of my notes and everything that you have discussed about my situation that made you come to this decision about me being fit enough to go back to work.

Stuart will making a statement on his view on my current situation.

 

Emma Goode, 35 Archer Road, Redditch, B98 8DN, 07383109492, emmasmith90@yahoo.com, 21/02/1990

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