Worcs Appointment confirmation

 Mrs EJ Goode 

Your case note number is: 4440496393, Your NHS number is: 610 600 7306 

Date: 17 December 2020

Dear Mrs Goode

We confirm the details of the outpatient appointment that has now been arranged for you to see a member of the Gynaecology Service.

The professional lead for this clinic is Mr J Hughes
Please arrive for this appointment no earlier than 5 minutes before your allotted appointment time and bring this appointment letter with you to the appointment.

Your appointment is: Wednesday, 20/01/2021 at 16:00 hrs
Clinic Location: CLOVER SUITE; LEVEL ONE
Hospital Site: WORCESTERSHIRE ROYAL HOSPITAL  

It is important that you attend this outpatient appointment. If you fail to attend, it is likely that no further outpatient appointments will be made for you.

Reminder to attend — we may automatically send you text messages to remind you to attend. If you do not want this to happen, please tell the clinic receptionist or your appointment booking co-ordinator

If you no longer need the appointment, or if you need to ask for another date or time, please contact the telephone number below. Please also let us know if your contact details change or if you change your GP. If your condition changes whilst you are waiting for your appointment, please ensure that you contact your GP. If you have any special requirements please contact the relevant Ward/Department prior to attending the Hospital so that we can make reasonable adjustments. The contact telephone number regarding this appointment is 01562 512312.

We know that coming to hospital during the current COVID-19 pandemic might cause our patients some anxiety and worry.

We want to reassure you that the NHS is here for you and we have your safety in mind. We have made some changes to our hospitals to reduce the risks so if you have visited before, you might find things are different

Please don’t come to the hospital if you are unwell with the symptoms of COVID-19 and can answer yes to either of the questions below, or by government guidance should be self-isolating. 

If this means you will not be able to attend your appointment, please call the number on your letter and we can rearrange it or we may be able to carry out your appointment by phone or video link. In the last 14 days, have you been diagnosed with COVID-19 or been in close contact with someone diagnosed with COVID-19?

read pdf for more info

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Phone call with Miss Donna Ghosh – Endometriosis Specialist Consultant

 

Tuesday 15^th December 2020 – Phone call with Miss Donna Ghosh – Endometriosis Specialist Consultant
Questions I asked
FOI Request
She will answer all the questions that my partner has asked in his FOI request.
If I wanted to receive my medical records, we will have to go through the Medical Record Department.

Treatment

She wants us to have a face to face appointment at her clinic. My partner is allowed to be there as well. At the face to face appointment we will be discussing future treatment. The face to face appointment will take place in Kidderminster in January or February but if she can see me sooner then she will. At the appointment she will examine me.

She is considering on doing another Laparoscopy surgery to find out if the previous doctor has missed anything as he was not an Endometriosis specialist. Also to remove any Endometriosis.

She wants me to stop taking the combined pill and start taking the pesterone only pill. It may stop my period altogether.

She mentioned that if she knew sooner how bad I was and how much pain I was suffering in she will defiantly seen me sooner.

The Endometriosis Nurse Corine Shaw will contact soon to discuss pain management.

She wants me to slowly cut down on Tramadol as it is not the best thing to take with Endometriosis. Also liquid morphine is not the best thing to take with Endometriosis.

She wants me to take a laxative drink that will help relax my bowels.

Later on in the future we will be discussing about the possibility of an injection. The injection will switch off my ovaries and put me in a menopausal state. If the injection helps then they will consider on doing a Hysterectomy. At this present time a Hysterectomy is not an option.

Other

She was very sympathic when I told her I lost my job over all of this.
The department has not received the referral letter from Mr Rai yet.

She told me exactly what they found when they did the operation back in September. There was no evidence of any scar tissue. My ovaries were normal. There were white areas on my Pouch of Douglas and on the left side of my pelvis which turned out to be Endometriosis. There were no problems at all with my right side.

She did say the Endometriosis was not that obvious to spot.

She will be sending me a letter explaining everything that was discussed in the phone call. She will also be sending a letter with the answers to my partners FOI request.

Me and my partner do wish that we had all of this information from the previous doctor.
My partner wants to set up a way for her to get direct access to my notes without going through a third party.

My partner is very happy with the response and waits for the answers to the FOI request.

I felt really happy with the way the phone call went and extremely happy with the way my case is going to be dealt with in the future.
Mrs Emma Goode

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Confirm call with Endo Specialist

 Mrs EJ Goode BEBOi Your case note number is: 4440496393 B98 8DN Your NHS number is: 610 600 7306 Your telephone number is: 9SES Date: 10 December 2020



Dear Mrs Goode

 We are writing to confirm your telephone consultation.


Please do not attend the Hospital for this appointment as it is a telephone consultation 

Details of your telephone Consultation:


Day of the week: Tuesday 
Date: 15/12/2020
Time: 10:00 hrs AL. 12.30pm

Please note that this is an estimated time for your consultation and Miss D Ghosh will telephone you within an hour of your scheduled appointment time.

 If you have recently changed contact telephone numbers, including your mobile number, we would be most grateful if you could notify the hospital on the number below.

The contact telephone number regarding this appointment is .

 Please ring 01562 513091 - Monday - Friday between the hours of 0900 - 1700.

Yours sincerely 
Appointments Co-ordinator 
On behalf of Gynaecology Service

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Conversation with the NHS Worcester Acute Hospital

 

Thursday 10^th December 2020 – Conversation with the NHS Worcester Acute Hospital

They have booked me a telephone conversation with a Miss Donna Ghosh. She is a Endometriosis Specialist Consultant.

She will phone me on Tuesday 15^th December at 3pm. We will be discussing about my condition and the letters me and my partner have recently sent out. She will explain everything to do with my condition and situation and answer any question we might have for her.

I am hoping that she will also tell me what they are planning to do in the near future.

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rachael turner 2 stu on phone

 2020 12 09 rachael turner 2 stu on phone

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Worcs Hospital FOI Officer

 

 

https://www.worcsacute.nhs.uk/our-trust/corporate-information/freedom-of-information

 

Freedom of Information

What is the Freedom of Information Act?

 

Access to Information includes all the information which the Trust is required to publish under the Information Commissioner’s revised Model Publication Scheme. The Guidance to Information document identifies what information is available through the Scheme.

 

Access to information

 

 documentGDPR Application Form for Health Records (58 KB)

 

The Freedom of Information Act and Amendment Act (2003) recognises that as a member of the public you have the right to know how public services, such as the NHS, are organised and run, how much they cost, and how you can make complaints if you wish to. You have the right to know what services are being provided, the targets that are being set, the standards of service that are expected, and the results achieved. Sometimes, we may not be able to provide information requested, but will explain the reasons why.

 

Requests for information should be made in writing to the Freedom of Information Officer, Worcestershire Royal Hospital, Charles Hastings Way, Worcester.

 

Requests can also be e-mailed to wah-tr.FOI@nhs.net.

 

Any questions, comments or complaints about Worcester Hospitals NHS Trust Publication Scheme should be sent to The Chief Executive’s Office at the address above.

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Royal College response

 

Thursday 03 December 2020

 DIRECT TELEPHONE: +44 (0) 207 772 6200
EMAIL foi@rcog.org.uk

 INFORMATION GOVERNANCE TEAM, 10-18 UNION STREET, LONDON, SE1 1SZ, UNITED KINGDOM

Ms Emma Goode: emmasmith90@yahoo.com Sent by email

  

Dear Ms Goode and Mr Morris,

 Re: Request for Information (RFI) under the Freedom of Information Act 2000 (FOIA) – MORRIS_FOI_20201125

 

Thank you for your two RFIs submitted under the FOIA, received Wednesday 25

November 2020.

 

Your request

Please see a copy of your requests attached and our response below.

 Your letters contain a mixture of requests for medical advice, Ms Goode’s personal data and questions concerning the clinical treatment Ms Goode received in response to her current medical condition.

 

For your background information:

·         The Freedom of Information Act 2000 (FOIA) governs the handling and disclosure of official information held by public authorities, such as NHS Trusts and hospitals.

·         The General Data Protection Regulation 2016 (GDPR) governs the handling and disclosure of personal data held by all organisations.

·         The hospital who delivered the clinical treatment is responsible for the delivery of that treatment and has the expertise to provide medical advice.

 

Our response

The Royal College of Obstetricians and Gynaecologists (the College) is not a public authority and therefore not subject to the Freedom of Information Act 2000 (FOIA).

 

The College does not hold any of Ms Goode’s personal data requested and cannot answer to the clinical care delivered so you and Ms Goode need to redirect these questions to the

(ICO): https://ico.org.uk/make-a-complaint/. If you are unhappy with the clinical care delivered by the hospital, you are able to complain to them directly or to the NHS: https://www.nhs.uk/using-the-nhs/about-the-nhs/how-to-complain-to-the-nhs/.

 

In addition to the above advice and guidance with regard to your rights of access to an organisation’s information, you may find a helpful public information leaflet relevant to Ms Goode’s condition from the following College website page: https://www.rcog.org.uk/en/patients/patient-leaflets/.

 

Your next steps

If you have any further queries about this RFI, please contact the Information Governance (IG) Team using the email and postal address at the top of this letter or call us between 9:00am – 4:30pm (UK time) Monday to Friday.

 

If you are unhappy with how we handled your request and would like to make a complaint, please contact the College with any further queries: https://www.rcog.org.uk/en/about- us/policies/complaints-policy/.

 

 

Yours sincerely,
Ms Ciara Shimidzu
Head of Information and Governance

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Emma's Letter to Wendy Juggins - Complaints Assistant

 Emma's letter to Wendy Juggins. Complaint's Assistant. Wednesday 2nd December 2020.

I am writing in response to the letter you sent my partner James Morris on the 27th November 2020.

You stated in your letter that you have enclosed a consent form for me to sign giving my partner permission  to speak and act on my behalf. Unfortunatly there was no constent form with the letter.

I am writing this letter to say I do give full consent for my partner James Stuart Morris to speak and act on my behalf. You can speak to himand tell him everything he wants to know.

I would like you to make sure that all of the question my partner have asked in his FOI request is answered fully and given the correct information as I would also like to know the answers.

You also stated that his FOI request was sent you via the HR Department as a Complaint. I would like it known that we are not putting in a complaint as of yet but if my partner's questions is not answered and if he is not happy with the response then we will make a formal complaint.

I want it noted that we have sent letters out on a numerous of occasions over the last year explaining about my condition and how I am not getting any better. We have not had enough feedback from the doctors or the hospitals as we would of liked.

Thank you for your co-operation. Hope to hear from you soon.

Mrs Emma Goode, 35 Archer Road, Redditch, B98 8DN, 07383109492, 21-02-1990, emmasmith90@yahoo.com

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stus letter to wendy

 

Stuart morris, 35 archer road, Redditch, b98 8dn : 2020 12 02 :
in ref to : Emma Jane Goode : NHS No : 6106007306 : Hospital No: 4440496393.

 

Dear wendy juggins.

Thank you very much for your response. But this is not a complaint, and it wasn’t my intention to make a complaint. That being said now, may eventually change depending on the surgeons and the hr departments failure to respond to my FOI request.

Please please please do not assume I want to complain as of yet. Instead please ask the hr department and the surgeon in question to respond to my FOI request within 30days of the date they received it unless they need more time to collate the info. If so, they can ask for more time in writing and I will gladly oblige accordingly. My document was clearly labelled as a freedom of information act request and not a complaint.

The surgeon actually gave emma a couple of weeks of an easier life so I am eternally grateful for that. sadly she is reverting back to the way she was and relying on her crutches more again.  She needs help!

Also just discovered tonight you have a website and realised I should also be talking to… ‘Freedom of Information Officer, Worcestershire Royal Hospital, Charles Hastings Way, Worcester’ … so could you please pass a copy of my request to this person or just let me know if I have to post another copy thank you.

Also, I totally and unconditionally want you and beg you to give anyone our info if you think they can help me to help my emma get better again. Please please please pass our info on to anyone else you think can help.

Can you please tell me why the relevant staff within hr made the assumption I was making a complaint and how they came about that assumption. Did no one read the title clearly saying please consider this all a foi request.

If I do decide to make a complaint I will make sure to inform you in due course.
thank you for your response and all the very best.
stu.

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Emma Update Letter

 Sunday 29th November 2020 - Emma's Update Letter

Since my last letter my condition and situation has been getting more worse.

I have been in load of pain. I have been awake in the night every night. I have been taking more Tramadol. I have been getting really uncomfortable.

I have to wake Stuart up every night to do my hot water bottle and to empty my pee jug. It is not fair on him having to lose sleep every night. I have to text him to wake him because the pain are that bad that I struggle to get out of bed and walk across the landing to wake him. Plus he doesn't like to see me standing up in pain.

I was on my period in the week commencing Monday 23rd November 2020. The whole week I was in constant severe pain, especially at nights. The pains was waking me up every night. There was a couple of nights where I had to take 3 Tramadol in the space of 4 hours. All week my belly felt and looked swollen, bloated and tender to the touch. I hardly bled at all. I started bleeding on Friday which was dark red color. I bled heavy on Saturday night and that was bright red but that was all.

I have spent all of my days in bed resting. Some days I do get up and do stuff around the house but after about 15 minutes I am back in pain and I have to get back in bed.

I went out for the first time in months on Friday 27th November 2020. I had to go to my son's Nursery for a meeting. I took 2 Tramadol before we left the house. We had to go in Stuart's mum’s car because there was no way I could walk it. Even though it was just around the corner. I did struggle sitting for a long period of time in the meeting. I had to stand up for 5 minutes to help me with the pain.

Last night (Saturday 28th November 2020) was a really bad night. I had sever chronic sharp stabbing period pain all over my abdomen, belly, groin and pelvic. I ended up breaking down into tears because of the severity of the pain I was in all night. I woke Stuart up to talk to him. He stayed up with me for a bit. I had to take 3 Tramadol in the space of 3 and a half hours. Stuart did my hot water bottle, emptied my pee jug and made me cups of coffee. I have been in tears more lately and it is defiantly getting to me now.

I am extremely fed up of being in my bed day in and day out. I am scared sometimes of getting out of bed because I know I will ended up in pain again one way or another. My showers and baths are also getting very few and far between because I struggle to stand for a long period of time. There has been a couple of times in the past month where Stuart had to bring me the stuff for me to brush my teeth in bed. Every day Stuart brings me a damp terry towel for me to have a wipe down and tea tree oil to put under my armpits to help stop smelling.

This lifestyle is not normal for someone like me. Especially having to spend the whole year like it. I am a mother and a partner. I got a job. But I cannot be any of them because of this condition and situation I am in.

Me and Stuart don't have sexual intercourse all that much anymore because it puts me in pain and then we have to stop. We had sexual Intercourse for the first time in months the other day and straight after I was in pain. If we do decided to have sexual intercourse then I make sure I take a Tramadol before we do and take one after we are finished. Now that is not normal for anybody. 

The letter that Mr. Rai recently sent me on 7/10/2020, stated that I will need to see the Endometriosis and Pain Management Team for future treatment. I want it stated that I am not going to be on tablets for the rest of my life. I mean I'm taking more and more Tramadol now because they are not working as quickly as they used to. I have stated more than once in the past that I want a Hysterectomy and that still stands. I am not going to have any more children and if it helps me have a normal life again then great. Do it.

Stuart sent out an FOI request and I hope you will answer all his question very soon.

I am now asking. How long do I have to be in this situation? How long does it take for you to realize that I am not happy with just taking tablets? How long does it take for you to realize that I want a Hysterectomy and I want one now? How long are you going to let me suffer in this pain?

Thank you for your co-operation

Emma Goode, 35 Archer Road, Redditch, B98 8DN. 07383109492. 21-02-1990. emmasmith90@yahoo.com.

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from complaints dep

 Ref: WJ/50438 Complaints Department 27 November 2020 3 Kings Court (First Floor) Worcestershire Royal Hospital PRIVATE & CONFIDENTIAL Charles ishbei James Morris orcester 35 Archer Road WRS 1DD Redditch B98 8DN 0300 123 1733

Dear James

We have been forwarded your correspondence by our HR department and have logged this as a formal complaint. | am sorry to hear of your concerns.

  Before we can commence an investigation, we require Emma’s consent to access her medical records and to respond to you; this is for reasons of confidentiality. | have enclosed a consent form to be completed and returned to the Trust by 18 December 2020 in the stamped addressed envelope provided.

If you have any queries or are concerned about this please contact us; if we do not receive the completed form or hear from you we will not be able to respond. Once we receive consent, the investigation process will begin and we will send you some more information regarding timescales.

 It may be necessary to disclose details of your complaint, our management of it and our response to you, to organisations who monitor, regulate or commission our services. If you have any objections to the information being disclosed please contact this department.

 have enclosed a leaflet which explains the process for handling formal complaints in more detail, and an information leaflet about Onside ICAS, the local advocacy service. Please do not hesitate to contact us on 0300 123 1733 or wah-tr.PET@nhs.net if we can be of any further assistance.

Yours sincerely

 Wendy Juggins
Complaints Assistant 

Encs: Complaint leaflet/ICAS leaflet/Consent Form/Stamped Addressed Envelope

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Letter from Gyno Specialist

 DEPARTMENT OF GYNAECOLOGY Worcestershire Royal Hospital Consultant: Mr Harnek Rai : Charles Hastings Way Secretary: Mrs Cath Joyner Newtown Road Email: cathryn.joyner@nhs.net Worcester Direct line: 01905 760655 : WR5 1DD Tel No: 01905 763333

Our Ref: HR/CJ Date: 27/11/2020 NHS No: 6106007306 Hospital No: 4440496393

Mrs Emma Goode 35 Archer Road Redditch Worcs Worcestershire B98 8DN

 Dear Mrs Goode

| have received a copy of the letter from you husband requesting Freedom of Information Act and access to notes. | have forwarded these letters to the appropriate person within the Trust and hopefully they will contact you and further your request.

 As you are aware, you had your surgery back in September of this year and soon after your surgery went off on leave following a family bereavement. | did not return to the Trust until October. As you| are aware at the time of surgery there was no obvious evidence of endometriosis although there were several white areas in your pelvis with no scar tissue to accountfor the majority of your symptoms. Two areas were biopsied and the result on one of the biopsies on your left hand side confirmed the presence of endometriosis. This was an unexpected finding | explained above, the pelvis otherwise looked generally healthy. In view of the fact that we now have a diagnosis of endometriosis, | have referred you on to the Endometriosis Clinic/ Pelvic Pain Clinic for further assessment and advice. As you are aware at the time of laparoscopy we visualised the outside surface of the uterus, the tubes and the ovaries as well as the surface of the bowel and the area behind the uterus. The white areas were behind the uterus and on the left sidewall of the pelvis, and it was the biopsy form the left sidewall which confirmed the diagnosis of endometriosis.

My expertise is not in endometriosis and hence why | have referred you on to the Endometriosis Clinic for further input and assessment and advice on further management. | apologise that | am unable to give you full explanations or answered to all of the questions that were asked, however, these may well be answered once you have been seen in the Endometriosis Clinic and as stated above | have forwarded the Freedom of Information request onto the relevant person within the Directorate. 

Yours sincerely 

Letter checked electronically
 Mr H Rai MBChB, FRCOG Consultant Obstetrician & Gynaecologist
Cc: Dr J V Ash : St Stephens Surgery Adelaide Street Redditch Worcestershire B97 4AL

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Doctor's Phone Call Wednesday - 06

 

2020 10 21 Doctor's Phone Call Wednesday – forwarded to Worcs HR Dep for their reference

Notes of Phone call with Dr Wiggett on Wednesday 21^st October 2020

Dr Wiggett said she was going to email the Doctor who did my operation as soon as possible, to find out what happened on the day and what they found. She going to find out what the doctor’s next line of enquiry was and who I need to see next. I explained that I still not heard anything from the doctor and that he did say that I would get a letter 2 weeks after my operation explaining everything about the operation and get the results from the 2 little white bits they found and sent off to the lab for testing.

She said there was no notes or feedback in my folder on the computer from the Hospital regarding my operation.

Dr Wiggett prescribed me some more Tramadol and some Amitriptyline to take one at night to help with my pains. After the phone call she sent me a text regarding the Amitriptyline with a link to a web address about more information regarding Amitriptyline.

We discussed the letter that both me and Stuart sent out on Monday 19^th October 2020 (by recorded delivery) regarding my latest condition. I explained to her how I am getting worse with the pain, mainly at night. I also explained that moving around the house or moving in bed really hurts me as well. I am back to using my crutches a lot more.

She requested a urine sample, which Stuart took in this afternoon.

I asked Dr Wiggett if it could be anything else apart from Endometriosis, e.g. like my kidneys. She said that she doesn’t think it is anything else and that it is Gynaecology related issue.

I am hoping that if she finds out anything from the doctor who did my operation that she will let me know as soon as possible.

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emmas assesment from stu - 02

 

PLEASE CONSIDER PART OF the F.O.I. REQUEST.
(Freedom of Information Act Request)

 

As sent previously but now part of foi request

Please ask if you want copies of all documents emailed to you

 

 

Emma Jane Goode : NHS No : 6106007306 : Hospital No: 4440496393.  :  Emma Mobile 07 383 109 492
email : emmasmith90@yahoo.com : if you want copies of our documents or emmas diary to date.

 

after waiting a month and having no feedback from yourselves i have decided to contact you directly regarding the following. please can you respond in kind in writing thru email or post please thank you.

 

emma has always consented for me to act or talk for her and on her behalf as she is shy, reserved, and mildly dislecsic, and i tend to be quite the opposite, as you can tell. normally i allready have consent to talk on her behalf as recorded at her GP for example, but please please please call her directly to confirm and record this for yourself first before you respond to my letter in any way shape or form thank you.

 

emma is a little bit more mobile during the day at the moment, and still suffering at nights though, but there is a distinct lesser reliabilty on her tradamol at the moment which is a blessing, but her symptoms are nevertheless still there, and her previous condition is still present. and on reflection from other women going through this procedure, i can only be honest and conclude she is where she was 2 months ago, and will eventually be where she was just before the operation. as you can appreciate i am desperately trying to avoid her condition worsening and want to speak to anyone who might be able to help.

 

you did say to emma on ther day that she would not need to see you again, and so i can only assume there is nothing else you can do for her, and would like you to advise us on who we can go and see next regarding her conditioning. if it isnt endo then can you please state your opinion in writing to us so we can try someone else who covers the anatomy from a different perspective.

 

bluntly, and put simply said, emma is not better yet, and she may continue to deteriorate, and i want to see whoever we can who might be able to help. if thats no longer you, then please supply me some names addresses etc for us to get in touch with so we cant get a different perspective or second opinion, whatever you think will be best for emma.

 

with the greatest respect to yourself, the pain management as mentioned in your first letter is not an option in my eyes for a 30year old woman taking as much as 5tradamol a day for the rest of her life, while spending most of her days in bed. thats where we were before the op and i dont want us going back to that by being complacent.

 

anyway, here are some questions and food for thoughts, that might give you a better insight, or different perspective as to what emma might be suffering with...

 

q1 can i have copy of emmas notes you recorded regarding her op if none can you please give me written detailed summary of what you did and what you found during the operation please. anything with info on what you found would be great thank you.

 

q2 based on your experience with emma, and based on your previous knowledge gained from hands on experience and informed opinion derived from other treatments and diagnosis you have had personally dealt with, could you give me an idea or an opinion of what you think might be happening with my emma if you have one. i appreciate you dont know for definate but if you have an informed opinion of any sorts, i would greatly appreciate your feedback. i do mean opinion, im not trying to hang you, but as you can appreciate i love my emma and i know nothing as of yet to this date of what actually took place.

 

q3 could you also mention what you looked at inside emma and what you didnt look at, in case we need to see another expert in a different department or be reffered to a different specialist in a different area. i would also like to know for my own peace of mind thank you.

 

q4  regarding her belly, sometimes just gently touching her own belly gently on the skin causes her great discomfort or pain, generally all round the belly button area and to the sides. (if becomes sensative to the touch) can you give me your informed opinion on what is causing this, and whatever else you think may be relevant to this symptom.

 

q5 on her right side by the belly by one of the insisions, and mainly at night now after a pee since the op, she has always had intermittantly sharp short stabbing pains which are extremely painfull to her, and totally debillatating to the point she goes to her own bed and takes her tradamol.

 

((( now again i must stress since your op she has had days she didnt need tradamol and a handfull of nights she didnt have to wake me up for help (i since found out tho shes been trying to leave me to sleep as i am struggling a bit now tbh) and so a definate improvement has been achieved but it is only small, and all of her previous symptoms are still there, i can tell because i keep quizzing her and listen very carefully to what she tells me. honestly, my opinion is we have pushed it back temporarily but the problem is still there for definate due to the description of the pain and suffering, as well as her movements and walking stick again, and  i am starting to see a greater degree of pain kreeping in emmas direction, but thats mainly at nights at the moment tbh. )))

 

can you please give me you informed opinion on what you think is causing this pain, and anything else you can tell me would be great so i can understand emmas condition a little better. you may supply me literature or links to read, but i most definately also want you opinion based on your present and previous experience with you patients please thank you.

 

sex is a bit sore for emma so we dont it at the moment tbh. and im way too concerned for emmas health to be shy about this so here goes...

 

q6  can you enlighten me as to why emma actually gets severe pain in the same said right side even just on slight arousal. so kissing my partner and showing her affection, can eventually result in her abdominal area getting so sore she walks away or i stop alltogether. any previous based informed experience regarding this or just your honest opinion and advise here would be greatly appreciated thank you.

 

(( i have just confirmed with emma the pain is almost identical to the usual short sharp stabbing pains she suffers from normally, and definately now at night after a pee at night time. ))

((( im really hoping you guys can put your sherlock holmes caps on and narrow her condition down to something more specific, and in turn, help you help me get my emma well again. )))

 

q7 may not be relevant - im not big down there but i will give you a clue, its in the question number, but i still to this very day worry and wonder wether our sex life has caused this and emma will tell you that i now instinctively try to avoid her at certain times so as not to eventually put the very woman i love in severe abdominal pain. so, is there any way her condition is caused by our sex life?

 

 

q8 could this below be a cause for concern?

really weird one here - prior to all this, beginning of the year, emma while emma was working she suddenly developed a strong severe continous cough that lingered for about two weeks. co-incidentally i also had one about november december 2019 that lingered but was no way near as deep routed as emmas. (mine was just more irritating and honestly, i had a cold and that was it) her cough though was that ittitable to her and that consistant she couldnt get any sleep whatsoever. so to help her out i got a bottle of whisky and she had lots of coffees with a tot of whisky, as well as some whisky and cokes in the hopes that would help alliviate the cough or just help her sleep. after talking with her now we dont think that ever worked, but she got better over time anyway, and we never thought anything more of it. the only reason why i bring it up, is i seem to remember it being very close that when her coughing stopped, not long after that, she develops this abdominabile problem, which at the beginning wouldnt have been as severe as it is now. its difficult to remember the details but nevertheless, you get the picture.

 

now i dont believe for a minute we ever had corona virus or even covid etc etc but there is a definate yes to was the coughing ever gut wrenching and deeply routed enough to maybe pull a muscle or cause a strain or tear a ligment or whatever. i remember her stomach was extremely sore just from all the non stop coughing she was going through. anyway, i just wanted you to have this info to hand.

 

 end of questions 

 honestly, sincerelly, and from my heart and faith based wisdom to yours, im not having a go at you or getting you ready for a law suite LOL, im just ver good and very quick at getting to the point. and sorry if this comes over any other way than that, but im not having my emma on tradamol for life, and she isnt going to be left suffering by me its just that plain and simple. after all thats what the NHS is for. if there is anyone else you think may be able to help then please let us know.

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FOI Request on behalf of Emma

 

PLEASE CONSIDER ALL THIS A F.O.I. REQUEST.
(Freedom of Information Act Request)

Written by james stuart morris : posted 23-11-2020 : 35 Archer Road, Redditch, Worcs, B98 8DN.
in ref to : Emma Jane Goode : NHS No : 6106007306 : Hospital No: 4440496393.
email : emmasmith90@yahoo.com : if you want copies of our documents or emmas diary to date.

I have decided to write this because the feedback from our surgeon has not been as informative as I would have liked it to have been. And as the nhs receives public funding, it should therefore in return be forthcoming with the info it collects on behalf of its patients. That said, I now feel it necessary to involve the HR (human resources) relevant to the surgeon, and instruct them accordingly to the FOI act rules (freedom of information act) and am telling everyone reading this that this is ALL now a freedom of information act request. I also instruct the relevant authority and HR department to ensure that ALL correspondence sent to us from now on, is seconded in opinion either by the HR department and/or another surgeon of similar skillset so to speak. HR can decide how to deal with this internally for now. If I don’t hear within 30days in writing or email with an answer to EACH question I ask, I will consider that to be a failure to honour my request, and then will definitely go and seek some outside legal advice. I don’t want to do that I don’t want to do that I don’t want to do that, but if I am avoided one more time by the said surgeon (who I presume is on an oath or contract) that will be my next step. If my questions are crappy, then say so, you certainly wont offend me. If you cant answer then say so.

So please please please, can someone, anyone out there, help me to help get my emma better again. That’s all I want really.

Its been nearly THREE months since the op, then we get a response from the surgeon, that fails to answer a single question I raised concerns over. The letter dated 07-10-2020 then takes a further month to get to us by post (unless it was posted after his leave of-course) so that’s just under 3 months before the surgeon decides to respond. Not good enough!!!

That’s disgusting in my eyes and needs some serious HR attention if you want my opinion.

Along with ‘’ALL’’ questions previously submitted, below I have added a few more. ALL are to be treated as a FOI request now. If you can also respond or give your thoughts on particular paragraphs or statements I have made along the way then please do. Failure to honour the FOI within 30days will definitely result in further action. If there are any charges incurred please let me know so I can pay you accordingly thank you.

Q9       surgeon : why didn’t you answer my questions when you first received them.

Q10     surgeon : can we please have a copy of the biopsy analysis thank you.

Q11     surgeon : if this a fair statement that represents emmas view of the op day (done for universal credits online update) and can you add or correct anything here. Is there anything else you told emma that she hasn’t written down here that might help me understand her condition a little better thank you.

I had a Laparoscopy Operation on Tuesday 1st September 2020. To find out if I have got Endometriosis.

They showed me the photos and said that I have not got Endometriosis.

They said that they did find some little white bits which they have cut out and sent off for testing. The consultant said that I will get the results in a few weeks. He had also said that he will no longer need to see me.

Q12     all : emma has given me consent to represent her and act on her behalf. Do you accept this. If not please get in touch with emma directly and ask her thank you.

Q13     hr & surgeon : please answer the following thank you. If you feel your latest response covers this q then please say so here thank you.

you did say to emma on ther day that she would not need to see you again, and so i can only assume there is nothing else you can do for her, and would like you to advise us on who we can go and see next regarding her conditioning. if it isnt endo then can you please state your opinion in writing to us so we can try someone else who covers the anatomy from a different perspective.

Q1 – Q8           surgeon & anyone : surgeon please answer all previously made available questions and anyone with an opinion, advice, or food for thought please chip in.

(Q7b    all :  addition: do you know we hardly ever have sex now because just the arousal puts emma in severe pain. I am asking EVERYONE who reads this. Is that normal. What causes this. How did this come to be. Have you come across this symptom before???)

Q14     all : as originally made available,,,

[[[ Emmas consent given for me to act on her behalf: I would like to say I do constant to you speaking to Stuart on my behalf because he will understand you better than me ]]]

And as I said previously,,,

have my consent to forward this info in its entirety to anyone who you think may be able to advise or help me and emma in any way shape or form whatsoever. that is my ONLY intent in this letter, nothing else, period.

PLEASE – if you know someone in the nhs that may be able to help, you are now duty bound by your oath or contract within the NHS as a Public Service Provider to consciously knowingly help us as I am now formally asking you to do so. If you don’t know then fine, say so, but if you do then please forward these details to them. If the surgeon feels he has already answered this by way of the latest response than please say so here thank you. And please don’t just assume I want to make a complaint royal college, Unhelpful.

Q15     surgeon & assistant : as per emmas statement please tell us why this did not happen.

I had my Laparoscopy Operation on Tuesday 1^st September 2020. I was told I would get a letter through the post within two weeks of having the operation and I still not heard anything and it been almost five weeks.

Q16     surgeon & theatre support team : as per emmas request, please answer this giving as much detail in writing as you can thank you. If you feel the latest response answer is sufficient then please say so.

I would like to know what it is you have found and what the results was from the lab. Both me and my partner Stuart wants to know exactly what you did during the operation. We also want to know why you said you did not want to see me again.

Q17     surgeon : 2^nd opinion surgeon : as per my emmas statement

I am still not back at work. I still cannot pick up my son. I am still struggling to sit down on a chair or the sofa for a certain amount of time. Standing is also still an issue. I can only do little jobs around the house but even then after about 10-15 minutes I am in severe pain and I am in bed for the rest of the day.

Taking into account surgeons latest biopsy report confirming endometriosis, I am asking what stage of endometriosis do you think my emma is at, taking into account this comment, and ALL previously submitted comments, as well as her extensive diary she has been keeping from the beginning. Please let me know if you need copies of anything.

Q18     all reading this who have input or advice or opinion : with reference to emmas notes

I am not taking the Tramadol as much during the day that is because I am in bed resting most days. I am taking at least 2 Tramadol in the night. I have noticed that if I do not take Tramadol for a few hours and I am moving about the house the pain kicks in and it’s a severe sharp stabbing pain.
I still cannot touch my belly or right side because it is so tender and sore.
I am defiantly slowly going back to the way I was before the Operation.

And my q5 as follows here for reference to this question only

on her right side by the belly by one of the insisions, and mainly at night now after a pee since the op, she has always had intermittantly sharp short stabbing pains which are extremely painfull to her, and totally debillatating to the point she goes to her own bed and takes her tradamol.

what is causing this. What does the incision have to do with this. What causes the sharp stabbing pains. Please give me your informed diagnosis as well as general opinions. Is there a history of this with previous patients having similar previous past procedures. Perhaps some statistical data analysis is may help here.

Q19     surgeon & assistant : emmas statement.

Since we sent the email to Mr Rai on the 4^th October we have not heard anything still. I have been looking at my emails at least 3-4 times a day. We been looking at the letter box every morning to see if we had a letter. I have had my phone with me all the time, but no phone call.

Did you receive the email? When did you first read it? Who read it? Why did no one respond?

Q20     surgeon & hr or surgeon second opinion : emmas statement as follows

Notice lately my urine is starting smelling really bad and I get sharp stabbing pains in my side after I pee. I am still spending my days in bed. Taking Tramadol up to 4 a day now that is also counting the ones I take at night. Still relying on my partner Stuart to do stuff around the house and to look after our son John.

The other night I was up most of the night and by the time I fell asleep I had taken 3 Tramadol to help with the pain I was in. Last night (Sunday 18^th October) was a bad night. I woke up in severe pain. I had to text Stuart to come through because of the pain I was in. Our son John even woke up and got disrupted by the situation.

Can you please diagnose or give your informed opinion on why this is happening or what is going on here thank you.

Q21     anyone who can help : emmas statement

I have waited long enough, been in pain long enough. I want answers please and I want them soon please. I also want to be taken to the next step. Thank you for your co-operation.

How long does she have to wait? Can anyone on the payroll out there help? Can anyone out there advise?

Q22     anyone who can help : my statemet given previously.

she did try and walk with me to the nursery with her crutches once, but had to turn back after about 10minutes to go home upon me asking her how she was, as she was in severe pain and was struggling to cope with the walk

for PIP reference: she walked from our home to bridge over a441 to hollytrees nursery and google maps says thats 0.5miles. in hindsite it was way too much for her and she was hobbling on her crutches all the way, she wont be attempting it again.

Do you think taking tramadol for the rest of her life is the answer here? Can anyone diagnose or give an informed opinion on what is wrong with my emma? Do you know of anyone who might be able to help my emma please???

Q23     surgeon & 2^nd opinion :  as per excerpts of emmas talk with Dr Wiggett on Wednesday 21^st October 2020

Dr Wiggett said she was going to email the Doctor who did my operation as soon as possible, to find out what happened on the day and what they found. She going to find out what the doctor’s next line of enquiry was and who I need to see next.

She said there was no notes or feedback in my folder on the computer from the Hospital regarding my operation

I asked Dr Wiggett if it could be anything else apart from Endometriosis, e.g. like my kidneys. She said that she doesn’t think it is anything else and that it is Gynaecology related issue.

I am hoping that if she finds out anything from the doctor who did my operation that she will let me know as soon as possible.

Did your department get this email and when did you get it? Do you agree with dr wiggetts diagnosis? Can HR get a second opinion from another same qualified surgeon please?

Q24     surgeon & assistand & HR : as per surgeon response, we had delivered through the post box on 09-11-2020  :  Our Ref: HR/CJ  -  Date: 07/10/2020   -  NHS No: 6106007306   -  Hospital No: 4440496393

What day was this letter sent please.

Q25     surgeon & hr : as per surgeons latest letter.

| would suggest that you be reviewed by the Endometriosis / Pelvic Pain Team for further discussion regarding management of your symptoms. You should expect to hear from the Team fairly shortly for an appointment in clinic

That’s fine. We aknowledge you have passed us on to another department, and would like to thank you for everything you have done as emma may not be better yet, but you most definitely have given her an extra couple of weeks of reduced pain. Sad to say though she is slipping back to the way she was.

Anyway, question is, please honour this FOI act request as deemed and in full and appropriately within the NHS guidelines, making sure the HR department is fully aware of my request upon receipt of this FOI,  and kept informed at ALL stages of progress from now on, and a second opinion of similar skillset at your surgical level is obtained wherever you can for my peace of mind please thank you.

Finally, as before, I wish you all peace and blessings & love and light to any and all. I wish no ill will to anyone, and know this to be true because that is what I am made of. But I do want answers now. And this is your last opportunity to treat me as you would wish to be treated if you were in my shoes with your loved one suffering as mine is. If you need longer let me know and I will extend the grace period, so as to ensure the very best of outcomes for the wonderful woman I fell in love with all those years ago.

Thank you for reading this, and god bless you all.
May Peace & Blessings & Prayers be with you.
stuart.

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