PRESCRIBER MESSAGES
st stephens we are required to notify all patients they have an accountable gp, this is your registered gp. any questions, please ask reception.
this does not prevent you seeing another doctor as your registered gp may not always be available.
Notes of Phone call with Dr Wiggett on Wednesday 21st
October 2020
Dr Wiggett said she was going to email the Doctor who did my
operation as soon as possible, to find out what happened on the day and what
they found. She going to find out what the doctor’s next line of enquiry was
and who I need to see next. I explained that I still not heard anything from
the doctor and that he did say that I would get a letter 2 weeks after my
operation explaining everything about the operation and get the results from
the 2 little white bits they found and sent off to the lab for testing.
She said there was no notes or feedback in my folder on the
computer from the Hospital regarding my operation.
Dr Wiggett prescribed me some more Tramadol and some
Amitriptyline to take one at night to help with my pains. After the phone call
she sent me a text regarding the Amitriptyline with a link to a web address
about more information regarding Amitriptyline.
We discussed the letter that both me and Stuart sent out on
Monday 19th October 2020 (by recorded delivery) regarding my latest
condition. I explained to her how I am getting worse with the pain, mainly at
night. I also explained that moving around the house or moving in bed really
hurts me as well. I am back to using my crutches a lot more.
She requested a urine sample, which Stuart took in this
afternoon.
I asked Dr Wiggett if it could be anything else apart from
Endometriosis, e.g. like my kidneys. She said that she doesn’t think it is
anything else and that it is Gynaecology related issue.
I am hoping that if she finds out anything from the doctor
who did my operation that she will let me know as soon as possible.
From Emma Goode
Since we sent the email to Mr Rai on the 4th
October we have not heard anything still. I have been looking at my emails at
least 3-4 times a day. We been looking at the letter box every morning to see
if we had a letter. I have had my phone with me all the time, but no phone
call.
I am really annoyed that no one has got in touch at all. I want
to know what is exactly going on and why am I waiting so long for answers and
for help.
My condition is getting worse. My right side is still really
painful and it is constant. My nights are the worst. Not sleeping much.
Notice lately my urine is starting smelling really bad and I
get sharp stabbing pains in my side after I pee. I am still spending my days in
bed. Taking Tramadol up to 4 a day now that is also counting the ones I take at
night. Still relying on my partner Stuart to do stuff around the house and to
look after our son John.
The other night I was up most of the night and by the time I
fell asleep I had taken 3 Tramadol to help with the pain I was in. Last night
(Sunday 18th October) was a bad night. I woke up in severe pain. I
had to text Stuart to come through because of the pain I was in. Our son John
even woke up and got disrupted by the situation.
I have waited long enough, been in pain long enough. I want
answers please and I want them soon please. I also want to be taken to the next
step. Thank you for your co-operation.
from stuart
morris
just a small
update on 19-10-2020 regarding emmas condition after her operation, and having
no feedback whatsoever, even after sending an email 2weeks ago. we have yet to
hear anything at all.
john hasnt
gone to nursery today because emma had a bad and sore night last night, and i
was up to deal with her a couple of times, and poor john just didnt get any
proper sleep either as this has also begun to effect his sleeping patterns sad
to say.
emma has
started using 2 tradamol (i think roughly) at nights now just to get some
sleep, and has started taking the odd few during the day now to get by. i can
also hear her groaning from severe pain when she trys to move in bed now. and
she is nearly always in bed to be honest.
she did try
and walk with me to the nursery with her crutches once, but had to turn back
after about 10minutes to go home upon me asking her how she was, as she was in
severe pain and was struggling to cope with the walk
for PIP reference:
she walked from our home to bridge over a441 to hollytrees nursery and google
maps says thats 0.5miles. in hindsite it was way too much for her and she was
hobbling on her crutches all the way, she wont be attempting it again.
emma and i
are both noticing now she is deteriating and its getting quicker and quicker
how much worse she is becoming. she is not as bad as she was before the op but
it certainlly is heading that way.
i have made
it clear that if the surgeon can do no more, then we need someone else to take
a look, and i have also asked for some written feedback from the surgeon on her
90minute operation. i have also asked for contacts if we need to speak to
anyone else as this has not gone away and emma is now getting worse again.
so please,
can anyone out there in the nhs help us, i have begged before, and i am now
begging again, please please please can someone get us someone to help us and
sit down and talk to us. please read the attached for our feedback to the
surgeon emailed 04-10-2020
thank you
thank you thank you and all the very best to all of you.
stu, emm, john.
after
waiting a month and having no feedback from yourselves i have decided to
contact you directly regarding the following. please can you respond in kind in
writing thru email or post please thank you.
emma has
always consented for me to act or talk for her and on her behalf as she is shy,
reserved, and mildly dislecsic, and i tend to be quite the opposite, as you can
tell. normally i allready have consent to talk on her behalf as recorded at her
GP for example, but please please please call her directly to confirm and
record this for yourself first before you respond to my letter in any way shape
or form thank you.
emma is a
little bit more mobile during the day at the moment, and still suffering at nights
though, but there is a distinct lesser reliabilty on her tradamol at the moment
which is a blessing, but her symptoms are nevertheless still there, and her
previous condition is still present. and on reflection from other women going
through this procedure, i can only be honest and conclude she is where she was
2 months ago, and will eventually be where she was just before the operation.
as you can appreciate i am desperately trying to avoid her condition worsening
and want to speak to anyone who might be able to help.
you did say
to emma on ther day that she would not need to see you again, and so i can only
assume there is nothing else you can do for her, and would like you to advise
us on who we can go and see next regarding her conditioning. if it isnt endo
then can you please state your opinion in writing to us so we can try someone
else who covers the anatomy from a different perspective.
bluntly, and
put simply said, emma is not better yet, and she may continue to deteriorate,
and i want to see whoever we can who might be able to help. if thats no longer
you, then please supply me some names addresses etc for us to get in touch with
so we cant get a different perspective or second opinion, whatever you think
will be best for emma.
with the
greatest respect to yourself, the pain management as mentioned in your first
letter is not an option in my eyes for a 30year old woman taking as much as
5tradamol a day for the rest of her life, while spending most of her days in
bed. thats where we were before the op and i dont want us going back to that by
being complacent.
anyway, here
are some questions and food for thoughts, that might give you a better insight,
or different perspective as to what emma might be suffering with...
q1
can i have copy of emmas notes you recorded regarding her op if none can you
please give me written detailed summary of what you did and what you found
during the operation please. anything with info on what you found would be
great thank you.
q2
based on your experience with emma, and based on your previous knowledge gained
from hands on experience and informed opinion derived from other treatments and
diagnosis you have had personally dealt with, could you give me an idea or an
opinion of what you think might be happening with my emma if you have one. i
appreciate you dont know for definate but if you have an informed opinion of
any sorts, i would greatly appreciate your feedback. i do mean opinion, im not
trying to hang you, but as you can appreciate i love my emma and i know nothing
as of yet to this date of what actually took place.
q3
could you also mention what you looked at inside emma and what you didnt look
at, in case we need to see another expert in a different department or be
reffered to a different specialist in a different area. i would also like to
know for my own peace of mind thank you.
q4
regarding her belly, sometimes just gently touching her own belly gently on the
skin causes her great discomfort or pain, generally all round the belly button
area and to the sides. (if becomes sensative to the touch) can you give me your
informed opinion on what is causing this, and whatever else you think may be
relevant to this symptom.
q5
on her right side by the belly by one of the insisions, and mainly at night now
after a pee since the op, she has always had intermittantly sharp short
stabbing pains which are extremely painfull to her, and totally debillatating
to the point she goes to her own bed and takes her tradamol.
((( now
again i must stress since your op she has had days she didnt need tradamol and
a handfull of nights she didnt have to wake me up for help (i since found out
tho shes been trying to leave me to sleep as i am struggling a bit now tbh) and
so a definate improvement has been achieved but it is only small, and all of
her previous symptoms are still there, i can tell because i keep quizzing her
and listen very carefully to what she tells me. honestly, my opinion is we have
pushed it back temporarily but the problem is still there for definate due to
the description of the pain and suffering, as well as her movements and walking
stick again, and i am starting to see a
greater degree of pain kreeping in emmas direction, but thats mainly at nights
at the moment tbh. )))
can you
please give me you informed opinion on what you think is causing this pain, and
anything else you can tell me would be great so i can understand emmas
condition a little better. you may supply me literature or links to read, but i
most definately also want you opinion based on your present and previous
experience with you patients please thank you.
sex is a bit sore for emma so we dont it at
the moment tbh. and im way too concerned for emmas health to be shy about this
so here goes...
q6
can you enlighten me as to why emma actually gets severe pain in the same said
right side even just on slight arousal. so kissing my partner and showing her
affection, can eventually result in her abdominal area getting so sore she
walks away or i stop alltogether. any previous based informed experience
regarding this or just your honest opinion and advise here would be greatly
appreciated thank you.
(( i have
just confirmed with emma the pain is almost identical to the usual short sharp
stabbing pains she suffers from normally, and definately now at night after a
pee at night time. ))
((( im
really hoping you guys can put your sherlock holmes caps on and narrow her
condition down to something more specific, and in turn, help you help me get my
emma well again. )))
q7
may not be relevant - im not big down there but i will give you a clue, its in
the question number, but i still to this very day worry and wonder wether our
sex life has caused this and emma will tell you that i now instinctively try to
avoid her at certain times so as not to eventually put the very woman i love in
severe abdominal pain. so, is there any way her condition is caused by our sex
life?
q8
could this below be a cause for concern?
really weird
one here - prior to all this, beginning of the year, emma while emma was
working she suddenly developed a strong severe continous cough that lingered
for about two weeks. co-incidentally i also had one about november december
2019 that lingered but was no way near as deep routed as emmas. (mine was just
more irritating and honestly, i had a cold and that was it) her cough though
was that ittitable to her and that consistant she couldnt get any sleep
whatsoever. so to help her out i got a bottle of whisky and she had lots of
coffees with a tot of whisky, as well as some whisky and cokes in the hopes
that would help alliviate the cough or just help her sleep. after talking with
her now we dont think that ever worked, but she got better over time anyway,
and we never thought anything more of it. the only reason why i bring it up, is
i seem to remember it being very close that when her coughing stopped, not long
after that, she develops this abdominabile problem, which at the beginning
wouldnt have been as severe as it is now. its difficult to remember the details
but nevertheless, you get the picture.
now i dont
believe for a minute we ever had corona virus or even covid etc etc but there
is a definate yes to was the coughing ever gut wrenching and deeply routed
enough to maybe pull a muscle or cause a strain or tear a ligment or whatever.
i remember her stomach was extremely sore just from all the non stop coughing
she was going through. anyway, i just wanted you to have this info to hand.
end of
questions
honestly, sincerelly, and from my heart and
faith based wisdom to yours, im not having a go at you or getting you ready for
a law suite LOL, im just ver good and very quick at getting to the point. and
sorry if this comes over any other way than that, but im not having my emma on
tradamol for life, and she isnt going to be left suffering by me its just that
plain and simple. after all thats what the NHS is for. if there is anyone else
you think may be able to help then please let us know.
once you have emmas consent, you certainly and
allready have my consent to forward this info in its entirety to anyone who you
think may be able to advise or help me and emma in any way shape or form
whatsoever. that is my ONLY intent in this letter, nothing else, period.
if you think the paperboy down the street
might be able to help tell him to get in touch, seriously, anyone you think can
help.
in the spirit of love & light and from
someone who luvs his gal, i thank you for all you have done so far.
thank you.
stu.
I had my Laparoscopy Operation on Tuesday 1st
September 2020. I was told I would get a letter through the post within two
weeks of having the operation and I still not heard anything and it been almost
five weeks.
I would like to know what it is you have found and what the
results was from the lab. Both me and my partner Stuart wants to know exactly
what you did during the operation. We also want to know why you said you did
not want to see me again.
It has been almost five weeks since my operation and I’m not
getting any better. The nights are the worse. Most nights I wake up to have a
pee and straight away I get a sharp stabbing pain in my right side which gets
worse within half an hour of having the pee. I end up taking a Tramadol and
Paracetamol and calling for Stuart to do my hot water bottle. If the pain
doesn’t calm down within an hour then I take another Tramadol and Paracetamol.
I am not sleeping much during the night either due to the pain I am in.
There have been a couple of times where I have broken down
in to tears because of two reasons mainly. One being the pain I am in at the
time and second because I am really fed up of all of this now to be honest with
you.
I am still not back at work. I still cannot pick up my son.
I am still struggling to sit down on a chair or the sofa for a certain amount
of time. Standing is also still an issue. I can only do little jobs around the
house but even then after about 10-15 minutes I am in severe pain and I am in
bed for the rest of the day.
My bedroom is still my house. I hardly ever go downstairs
and spend time with my family. Stuart stills does everything around the house,
for example, cooking, cleaning, washing and looking after our son.
I went out for the first time on Wednesday 30th
September 2020. I went to town, I was only out for an hour then I had to spend
the rest of the day in bed again resting because I was in so much pain from
walking. I am also dealing with the pain the day after. Since that day I have
used my crutches nonstop. The pain has been constant. Sometimes it just a light
pain and other times it has been a severe pain. All on my right side again.
I get sore from just moving around or walking around the
house. I noticed that if I am in really bad pain I am leaping.
You said that you could not find any Endometriosis, so if I
have not got Endometriosis then what is wrong with me. You did say you found
two little white bits, which you cut off and sent to the lab. What was they and
could they grow back.
I am not taking the Tramadol as much during the day that is
because I am in bed resting most days. I am taking at least 2 Tramadol in the
night. I have noticed that if I do not take Tramadol for a few hours and I am
moving about the house the pain kicks in and it’s a severe sharp stabbing pain.
I still cannot touch my belly or right side because it is so
tender and sore.
I am defiantly slowly going back to the way I was before the
Operation.
Is there another specialist or route I can go down to help
me get past all of this pain and go back to the way I was last year. I am 30
years old, I do not want to be on tablets for the rest of my life. I have said
on a numerous occasions that I would like to have a Hysterectomy but nothing
has been done or discussed about it. Can you please but this down on my notes
and consider it for the future.
I would like to say I do constant to you speaking to Stuart
on my behalf because he will understand you better than me.
Please I would like some feedback and help to go forward
with my condition.
Thank you for taking the time in reading this and I hope to
hear from you very soon either by e-mail or by post.
Mrs Emma Goode
35 Archer Road, Redditch, B98 8DN. 07383190492. Emmasmith90@yahoo.com.
21/02/1990
