after
waiting a month and having no feedback from yourselves i have decided to
contact you directly regarding the following. please can you respond in kind in
writing thru email or post please thank you.
emma has
always consented for me to act or talk for her and on her behalf as she is shy,
reserved, and mildly dislecsic, and i tend to be quite the opposite, as you can
tell. normally i allready have consent to talk on her behalf as recorded at her
GP for example, but please please please call her directly to confirm and
record this for yourself first before you respond to my letter in any way shape
or form thank you.
emma is a
little bit more mobile during the day at the moment, and still suffering at nights
though, but there is a distinct lesser reliabilty on her tradamol at the moment
which is a blessing, but her symptoms are nevertheless still there, and her
previous condition is still present. and on reflection from other women going
through this procedure, i can only be honest and conclude she is where she was
2 months ago, and will eventually be where she was just before the operation.
as you can appreciate i am desperately trying to avoid her condition worsening
and want to speak to anyone who might be able to help.
you did say
to emma on ther day that she would not need to see you again, and so i can only
assume there is nothing else you can do for her, and would like you to advise
us on who we can go and see next regarding her conditioning. if it isnt endo
then can you please state your opinion in writing to us so we can try someone
else who covers the anatomy from a different perspective.
bluntly, and
put simply said, emma is not better yet, and she may continue to deteriorate,
and i want to see whoever we can who might be able to help. if thats no longer
you, then please supply me some names addresses etc for us to get in touch with
so we cant get a different perspective or second opinion, whatever you think
will be best for emma.
with the
greatest respect to yourself, the pain management as mentioned in your first
letter is not an option in my eyes for a 30year old woman taking as much as
5tradamol a day for the rest of her life, while spending most of her days in
bed. thats where we were before the op and i dont want us going back to that by
being complacent.
anyway, here
are some questions and food for thoughts, that might give you a better insight,
or different perspective as to what emma might be suffering with...
q1
can i have copy of emmas notes you recorded regarding her op if none can you
please give me written detailed summary of what you did and what you found
during the operation please. anything with info on what you found would be
great thank you.
q2
based on your experience with emma, and based on your previous knowledge gained
from hands on experience and informed opinion derived from other treatments and
diagnosis you have had personally dealt with, could you give me an idea or an
opinion of what you think might be happening with my emma if you have one. i
appreciate you dont know for definate but if you have an informed opinion of
any sorts, i would greatly appreciate your feedback. i do mean opinion, im not
trying to hang you, but as you can appreciate i love my emma and i know nothing
as of yet to this date of what actually took place.
q3
could you also mention what you looked at inside emma and what you didnt look
at, in case we need to see another expert in a different department or be
reffered to a different specialist in a different area. i would also like to
know for my own peace of mind thank you.
q4
regarding her belly, sometimes just gently touching her own belly gently on the
skin causes her great discomfort or pain, generally all round the belly button
area and to the sides. (if becomes sensative to the touch) can you give me your
informed opinion on what is causing this, and whatever else you think may be
relevant to this symptom.
q5
on her right side by the belly by one of the insisions, and mainly at night now
after a pee since the op, she has always had intermittantly sharp short
stabbing pains which are extremely painfull to her, and totally debillatating
to the point she goes to her own bed and takes her tradamol.
((( now
again i must stress since your op she has had days she didnt need tradamol and
a handfull of nights she didnt have to wake me up for help (i since found out
tho shes been trying to leave me to sleep as i am struggling a bit now tbh) and
so a definate improvement has been achieved but it is only small, and all of
her previous symptoms are still there, i can tell because i keep quizzing her
and listen very carefully to what she tells me. honestly, my opinion is we have
pushed it back temporarily but the problem is still there for definate due to
the description of the pain and suffering, as well as her movements and walking
stick again, and i am starting to see a
greater degree of pain kreeping in emmas direction, but thats mainly at nights
at the moment tbh. )))
can you
please give me you informed opinion on what you think is causing this pain, and
anything else you can tell me would be great so i can understand emmas
condition a little better. you may supply me literature or links to read, but i
most definately also want you opinion based on your present and previous
experience with you patients please thank you.
sex is a bit sore for emma so we dont it at
the moment tbh. and im way too concerned for emmas health to be shy about this
so here goes...
q6
can you enlighten me as to why emma actually gets severe pain in the same said
right side even just on slight arousal. so kissing my partner and showing her
affection, can eventually result in her abdominal area getting so sore she
walks away or i stop alltogether. any previous based informed experience
regarding this or just your honest opinion and advise here would be greatly
appreciated thank you.
(( i have
just confirmed with emma the pain is almost identical to the usual short sharp
stabbing pains she suffers from normally, and definately now at night after a
pee at night time. ))
((( im
really hoping you guys can put your sherlock holmes caps on and narrow her
condition down to something more specific, and in turn, help you help me get my
emma well again. )))
q7
may not be relevant - im not big down there but i will give you a clue, its in
the question number, but i still to this very day worry and wonder wether our
sex life has caused this and emma will tell you that i now instinctively try to
avoid her at certain times so as not to eventually put the very woman i love in
severe abdominal pain. so, is there any way her condition is caused by our sex
life?
q8
could this below be a cause for concern?
really weird
one here - prior to all this, beginning of the year, emma while emma was
working she suddenly developed a strong severe continous cough that lingered
for about two weeks. co-incidentally i also had one about november december
2019 that lingered but was no way near as deep routed as emmas. (mine was just
more irritating and honestly, i had a cold and that was it) her cough though
was that ittitable to her and that consistant she couldnt get any sleep
whatsoever. so to help her out i got a bottle of whisky and she had lots of
coffees with a tot of whisky, as well as some whisky and cokes in the hopes
that would help alliviate the cough or just help her sleep. after talking with
her now we dont think that ever worked, but she got better over time anyway,
and we never thought anything more of it. the only reason why i bring it up, is
i seem to remember it being very close that when her coughing stopped, not long
after that, she develops this abdominabile problem, which at the beginning
wouldnt have been as severe as it is now. its difficult to remember the details
but nevertheless, you get the picture.
now i dont
believe for a minute we ever had corona virus or even covid etc etc but there
is a definate yes to was the coughing ever gut wrenching and deeply routed
enough to maybe pull a muscle or cause a strain or tear a ligment or whatever.
i remember her stomach was extremely sore just from all the non stop coughing
she was going through. anyway, i just wanted you to have this info to hand.
end of
questions
honestly, sincerelly, and from my heart and
faith based wisdom to yours, im not having a go at you or getting you ready for
a law suite LOL, im just ver good and very quick at getting to the point. and
sorry if this comes over any other way than that, but im not having my emma on
tradamol for life, and she isnt going to be left suffering by me its just that
plain and simple. after all thats what the NHS is for. if there is anyone else
you think may be able to help then please let us know.
once you have emmas consent, you certainly and
allready have my consent to forward this info in its entirety to anyone who you
think may be able to advise or help me and emma in any way shape or form
whatsoever. that is my ONLY intent in this letter, nothing else, period.
if you think the paperboy down the street
might be able to help tell him to get in touch, seriously, anyone you think can
help.
in the spirit of love & light and from
someone who luvs his gal, i thank you for all you have done so far.
thank you.
stu.