Saturday, 21 November 2020

Doctor's Phone Call Wednesday - 06

 

2020 10 21 Doctor's Phone Call Wednesday – forwarded to Worcs HR Dep for their reference

Notes of Phone call with Dr Wiggett on Wednesday 21st October 2020

Dr Wiggett said she was going to email the Doctor who did my operation as soon as possible, to find out what happened on the day and what they found. She going to find out what the doctor’s next line of enquiry was and who I need to see next. I explained that I still not heard anything from the doctor and that he did say that I would get a letter 2 weeks after my operation explaining everything about the operation and get the results from the 2 little white bits they found and sent off to the lab for testing.

She said there was no notes or feedback in my folder on the computer from the Hospital regarding my operation.

Dr Wiggett prescribed me some more Tramadol and some Amitriptyline to take one at night to help with my pains. After the phone call she sent me a text regarding the Amitriptyline with a link to a web address about more information regarding Amitriptyline.

We discussed the letter that both me and Stuart sent out on Monday 19th October 2020 (by recorded delivery) regarding my latest condition. I explained to her how I am getting worse with the pain, mainly at night. I also explained that moving around the house or moving in bed really hurts me as well. I am back to using my crutches a lot more.

She requested a urine sample, which Stuart took in this afternoon.

I asked Dr Wiggett if it could be anything else apart from Endometriosis, e.g. like my kidneys. She said that she doesn’t think it is anything else and that it is Gynaecology related issue.

I am hoping that if she finds out anything from the doctor who did my operation that she will let me know as soon as possible.

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emmas assesment from stu - 02

 

PLEASE CONSIDER PART OF the F.O.I. REQUEST.
(Freedom of Information Act Request)

 

As sent previously but now part of foi request

Please ask if you want copies of all documents emailed to you

 

 

Emma Jane Goode : NHS No : 6106007306 : Hospital No: 4440496393.  :  Emma Mobile 07 383 109 492
email : emmasmith90@yahoo.com : if you want copies of our documents or emmas diary to date.

 

after waiting a month and having no feedback from yourselves i have decided to contact you directly regarding the following. please can you respond in kind in writing thru email or post please thank you.

 

emma has always consented for me to act or talk for her and on her behalf as she is shy, reserved, and mildly dislecsic, and i tend to be quite the opposite, as you can tell. normally i allready have consent to talk on her behalf as recorded at her GP for example, but please please please call her directly to confirm and record this for yourself first before you respond to my letter in any way shape or form thank you.

 

emma is a little bit more mobile during the day at the moment, and still suffering at nights though, but there is a distinct lesser reliabilty on her tradamol at the moment which is a blessing, but her symptoms are nevertheless still there, and her previous condition is still present. and on reflection from other women going through this procedure, i can only be honest and conclude she is where she was 2 months ago, and will eventually be where she was just before the operation. as you can appreciate i am desperately trying to avoid her condition worsening and want to speak to anyone who might be able to help.

 

you did say to emma on ther day that she would not need to see you again, and so i can only assume there is nothing else you can do for her, and would like you to advise us on who we can go and see next regarding her conditioning. if it isnt endo then can you please state your opinion in writing to us so we can try someone else who covers the anatomy from a different perspective.

 

bluntly, and put simply said, emma is not better yet, and she may continue to deteriorate, and i want to see whoever we can who might be able to help. if thats no longer you, then please supply me some names addresses etc for us to get in touch with so we cant get a different perspective or second opinion, whatever you think will be best for emma.

 

with the greatest respect to yourself, the pain management as mentioned in your first letter is not an option in my eyes for a 30year old woman taking as much as 5tradamol a day for the rest of her life, while spending most of her days in bed. thats where we were before the op and i dont want us going back to that by being complacent.

 

anyway, here are some questions and food for thoughts, that might give you a better insight, or different perspective as to what emma might be suffering with...

 

q1 can i have copy of emmas notes you recorded regarding her op if none can you please give me written detailed summary of what you did and what you found during the operation please. anything with info on what you found would be great thank you.

 

q2 based on your experience with emma, and based on your previous knowledge gained from hands on experience and informed opinion derived from other treatments and diagnosis you have had personally dealt with, could you give me an idea or an opinion of what you think might be happening with my emma if you have one. i appreciate you dont know for definate but if you have an informed opinion of any sorts, i would greatly appreciate your feedback. i do mean opinion, im not trying to hang you, but as you can appreciate i love my emma and i know nothing as of yet to this date of what actually took place.

 

q3 could you also mention what you looked at inside emma and what you didnt look at, in case we need to see another expert in a different department or be reffered to a different specialist in a different area. i would also like to know for my own peace of mind thank you.

 

q4  regarding her belly, sometimes just gently touching her own belly gently on the skin causes her great discomfort or pain, generally all round the belly button area and to the sides. (if becomes sensative to the touch) can you give me your informed opinion on what is causing this, and whatever else you think may be relevant to this symptom.

 

q5 on her right side by the belly by one of the insisions, and mainly at night now after a pee since the op, she has always had intermittantly sharp short stabbing pains which are extremely painfull to her, and totally debillatating to the point she goes to her own bed and takes her tradamol.

 

((( now again i must stress since your op she has had days she didnt need tradamol and a handfull of nights she didnt have to wake me up for help (i since found out tho shes been trying to leave me to sleep as i am struggling a bit now tbh) and so a definate improvement has been achieved but it is only small, and all of her previous symptoms are still there, i can tell because i keep quizzing her and listen very carefully to what she tells me. honestly, my opinion is we have pushed it back temporarily but the problem is still there for definate due to the description of the pain and suffering, as well as her movements and walking stick again, and  i am starting to see a greater degree of pain kreeping in emmas direction, but thats mainly at nights at the moment tbh. )))

 

can you please give me you informed opinion on what you think is causing this pain, and anything else you can tell me would be great so i can understand emmas condition a little better. you may supply me literature or links to read, but i most definately also want you opinion based on your present and previous experience with you patients please thank you.

 

sex is a bit sore for emma so we dont it at the moment tbh. and im way too concerned for emmas health to be shy about this so here goes...

 

q6  can you enlighten me as to why emma actually gets severe pain in the same said right side even just on slight arousal. so kissing my partner and showing her affection, can eventually result in her abdominal area getting so sore she walks away or i stop alltogether. any previous based informed experience regarding this or just your honest opinion and advise here would be greatly appreciated thank you.

 

(( i have just confirmed with emma the pain is almost identical to the usual short sharp stabbing pains she suffers from normally, and definately now at night after a pee at night time. ))

((( im really hoping you guys can put your sherlock holmes caps on and narrow her condition down to something more specific, and in turn, help you help me get my emma well again. )))

 

q7 may not be relevant - im not big down there but i will give you a clue, its in the question number, but i still to this very day worry and wonder wether our sex life has caused this and emma will tell you that i now instinctively try to avoid her at certain times so as not to eventually put the very woman i love in severe abdominal pain. so, is there any way her condition is caused by our sex life?

 

 

q8 could this below be a cause for concern?

really weird one here - prior to all this, beginning of the year, emma while emma was working she suddenly developed a strong severe continous cough that lingered for about two weeks. co-incidentally i also had one about november december 2019 that lingered but was no way near as deep routed as emmas. (mine was just more irritating and honestly, i had a cold and that was it) her cough though was that ittitable to her and that consistant she couldnt get any sleep whatsoever. so to help her out i got a bottle of whisky and she had lots of coffees with a tot of whisky, as well as some whisky and cokes in the hopes that would help alliviate the cough or just help her sleep. after talking with her now we dont think that ever worked, but she got better over time anyway, and we never thought anything more of it. the only reason why i bring it up, is i seem to remember it being very close that when her coughing stopped, not long after that, she develops this abdominabile problem, which at the beginning wouldnt have been as severe as it is now. its difficult to remember the details but nevertheless, you get the picture.

 

now i dont believe for a minute we ever had corona virus or even covid etc etc but there is a definate yes to was the coughing ever gut wrenching and deeply routed enough to maybe pull a muscle or cause a strain or tear a ligment or whatever. i remember her stomach was extremely sore just from all the non stop coughing she was going through. anyway, i just wanted you to have this info to hand.

 

 end of questions 

 honestly, sincerelly, and from my heart and faith based wisdom to yours, im not having a go at you or getting you ready for a law suite LOL, im just ver good and very quick at getting to the point. and sorry if this comes over any other way than that, but im not having my emma on tradamol for life, and she isnt going to be left suffering by me its just that plain and simple. after all thats what the NHS is for. if there is anyone else you think may be able to help then please let us know.

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FOI Request on behalf of Emma

 

PLEASE CONSIDER ALL THIS A F.O.I. REQUEST.
(Freedom of Information Act Request)

Written by james stuart morris : posted 23-11-2020 : 35 Archer Road, Redditch, Worcs, B98 8DN.
in ref to : Emma Jane Goode : NHS No : 6106007306 : Hospital No: 4440496393.
email : emmasmith90@yahoo.com : if you want copies of our documents or emmas diary to date.

I have decided to write this because the feedback from our surgeon has not been as informative as I would have liked it to have been. And as the nhs receives public funding, it should therefore in return be forthcoming with the info it collects on behalf of its patients. That said, I now feel it necessary to involve the HR (human resources) relevant to the surgeon, and instruct them accordingly to the FOI act rules (freedom of information act) and am telling everyone reading this that this is ALL now a freedom of information act request. I also instruct the relevant authority and HR department to ensure that ALL correspondence sent to us from now on, is seconded in opinion either by the HR department and/or another surgeon of similar skillset so to speak. HR can decide how to deal with this internally for now. If I don’t hear within 30days in writing or email with an answer to EACH question I ask, I will consider that to be a failure to honour my request, and then will definitely go and seek some outside legal advice. I don’t want to do that I don’t want to do that I don’t want to do that, but if I am avoided one more time by the said surgeon (who I presume is on an oath or contract) that will be my next step. If my questions are crappy, then say so, you certainly wont offend me. If you cant answer then say so.

So please please please, can someone, anyone out there, help me to help get my emma better again. That’s all I want really.

Its been nearly THREE months since the op, then we get a response from the surgeon, that fails to answer a single question I raised concerns over. The letter dated 07-10-2020 then takes a further month to get to us by post (unless it was posted after his leave of-course) so that’s just under 3 months before the surgeon decides to respond. Not good enough!!!

That’s disgusting in my eyes and needs some serious HR attention if you want my opinion.

Along with ‘’ALL’’ questions previously submitted, below I have added a few more. ALL are to be treated as a FOI request now. If you can also respond or give your thoughts on particular paragraphs or statements I have made along the way then please do. Failure to honour the FOI within 30days will definitely result in further action. If there are any charges incurred please let me know so I can pay you accordingly thank you.

Q9       surgeon : why didn’t you answer my questions when you first received them.

Q10     surgeon : can we please have a copy of the biopsy analysis thank you.

Q11     surgeon : if this a fair statement that represents emmas view of the op day (done for universal credits online update) and can you add or correct anything here. Is there anything else you told emma that she hasn’t written down here that might help me understand her condition a little better thank you.

I had a Laparoscopy Operation on Tuesday 1st September 2020. To find out if I have got Endometriosis.

They showed me the photos and said that I have not got Endometriosis.

They said that they did find some little white bits which they have cut out and sent off for testing. The consultant said that I will get the results in a few weeks. He had also said that he will no longer need to see me.

Q12     all : emma has given me consent to represent her and act on her behalf. Do you accept this. If not please get in touch with emma directly and ask her thank you.

Q13     hr & surgeon : please answer the following thank you. If you feel your latest response covers this q then please say so here thank you.

you did say to emma on ther day that she would not need to see you again, and so i can only assume there is nothing else you can do for her, and would like you to advise us on who we can go and see next regarding her conditioning. if it isnt endo then can you please state your opinion in writing to us so we can try someone else who covers the anatomy from a different perspective.

Q1 – Q8           surgeon & anyone : surgeon please answer all previously made available questions and anyone with an opinion, advice, or food for thought please chip in.

(Q7b    all :  addition: do you know we hardly ever have sex now because just the arousal puts emma in severe pain. I am asking EVERYONE who reads this. Is that normal. What causes this. How did this come to be. Have you come across this symptom before???)

Q14     all : as originally made available,,,

[[[ Emmas consent given for me to act on her behalf: I would like to say I do constant to you speaking to Stuart on my behalf because he will understand you better than me ]]]

And as I said previously,,,

have my consent to forward this info in its entirety to anyone who you think may be able to advise or help me and emma in any way shape or form whatsoever. that is my ONLY intent in this letter, nothing else, period.

PLEASE – if you know someone in the nhs that may be able to help, you are now duty bound by your oath or contract within the NHS as a Public Service Provider to consciously knowingly help us as I am now formally asking you to do so. If you don’t know then fine, say so, but if you do then please forward these details to them. If the surgeon feels he has already answered this by way of the latest response than please say so here thank you. And please don’t just assume I want to make a complaint royal college, Unhelpful.

Q15     surgeon & assistant : as per emmas statement please tell us why this did not happen.

I had my Laparoscopy Operation on Tuesday 1st September 2020. I was told I would get a letter through the post within two weeks of having the operation and I still not heard anything and it been almost five weeks.

Q16     surgeon & theatre support team : as per emmas request, please answer this giving as much detail in writing as you can thank you. If you feel the latest response answer is sufficient then please say so.

I would like to know what it is you have found and what the results was from the lab. Both me and my partner Stuart wants to know exactly what you did during the operation. We also want to know why you said you did not want to see me again.

Q17     surgeon : 2nd opinion surgeon : as per my emmas statement

I am still not back at work. I still cannot pick up my son. I am still struggling to sit down on a chair or the sofa for a certain amount of time. Standing is also still an issue. I can only do little jobs around the house but even then after about 10-15 minutes I am in severe pain and I am in bed for the rest of the day.

Taking into account surgeons latest biopsy report confirming endometriosis, I am asking what stage of endometriosis do you think my emma is at, taking into account this comment, and ALL previously submitted comments, as well as her extensive diary she has been keeping from the beginning. Please let me know if you need copies of anything.

Q18     all reading this who have input or advice or opinion : with reference to emmas notes

I am not taking the Tramadol as much during the day that is because I am in bed resting most days. I am taking at least 2 Tramadol in the night. I have noticed that if I do not take Tramadol for a few hours and I am moving about the house the pain kicks in and it’s a severe sharp stabbing pain.
I still cannot touch my belly or right side because it is so tender and sore.
I am defiantly slowly going back to the way I was before the Operation.

And my q5 as follows here for reference to this question only

on her right side by the belly by one of the insisions, and mainly at night now after a pee since the op, she has always had intermittantly sharp short stabbing pains which are extremely painfull to her, and totally debillatating to the point she goes to her own bed and takes her tradamol.


what is causing this. What does the incision have to do with this. What causes the sharp stabbing pains. Please give me your informed diagnosis as well as general opinions. Is there a history of this with previous patients having similar previous past procedures. Perhaps some statistical data analysis is may help here.

Q19     surgeon & assistant : emmas statement.

Since we sent the email to Mr Rai on the 4th October we have not heard anything still. I have been looking at my emails at least 3-4 times a day. We been looking at the letter box every morning to see if we had a letter. I have had my phone with me all the time, but no phone call.

Did you receive the email? When did you first read it? Who read it? Why did no one respond?

Q20     surgeon & hr or surgeon second opinion : emmas statement as follows

Notice lately my urine is starting smelling really bad and I get sharp stabbing pains in my side after I pee. I am still spending my days in bed. Taking Tramadol up to 4 a day now that is also counting the ones I take at night. Still relying on my partner Stuart to do stuff around the house and to look after our son John.

The other night I was up most of the night and by the time I fell asleep I had taken 3 Tramadol to help with the pain I was in. Last night (Sunday 18th October) was a bad night. I woke up in severe pain. I had to text Stuart to come through because of the pain I was in. Our son John even woke up and got disrupted by the situation.

Can you please diagnose or give your informed opinion on why this is happening or what is going on here thank you.

Q21     anyone who can help : emmas statement

I have waited long enough, been in pain long enough. I want answers please and I want them soon please. I also want to be taken to the next step. Thank you for your co-operation.

How long does she have to wait? Can anyone on the payroll out there help? Can anyone out there advise?

Q22     anyone who can help : my statemet given previously.

she did try and walk with me to the nursery with her crutches once, but had to turn back after about 10minutes to go home upon me asking her how she was, as she was in severe pain and was struggling to cope with the walk

for PIP reference: she walked from our home to bridge over a441 to hollytrees nursery and google maps says thats 0.5miles. in hindsite it was way too much for her and she was hobbling on her crutches all the way, she wont be attempting it again.

Do you think taking tramadol for the rest of her life is the answer here? Can anyone diagnose or give an informed opinion on what is wrong with my emma? Do you know of anyone who might be able to help my emma please???

Q23     surgeon & 2nd opinion :  as per excerpts of emmas talk with Dr Wiggett on Wednesday 21st October 2020

Dr Wiggett said she was going to email the Doctor who did my operation as soon as possible, to find out what happened on the day and what they found. She going to find out what the doctor’s next line of enquiry was and who I need to see next.

She said there was no notes or feedback in my folder on the computer from the Hospital regarding my operation

I asked Dr Wiggett if it could be anything else apart from Endometriosis, e.g. like my kidneys. She said that she doesn’t think it is anything else and that it is Gynaecology related issue.

I am hoping that if she finds out anything from the doctor who did my operation that she will let me know as soon as possible.

Did your department get this email and when did you get it? Do you agree with dr wiggetts diagnosis? Can HR get a second opinion from another same qualified surgeon please?

Q24     surgeon & assistand & HR : as per surgeon response, we had delivered through the post box on 09-11-2020  :  Our Ref: HR/CJ  -  Date: 07/10/2020   -  NHS No: 6106007306   -  Hospital No: 4440496393

What day was this letter sent please.

Q25     surgeon & hr : as per surgeons latest letter.

| would suggest that you be reviewed by the Endometriosis / Pelvic Pain Team for further discussion regarding management of your symptoms. You should expect to hear from the Team fairly shortly for an appointment in clinic

That’s fine. We aknowledge you have passed us on to another department, and would like to thank you for everything you have done as emma may not be better yet, but you most definitely have given her an extra couple of weeks of reduced pain. Sad to say though she is slipping back to the way she was.

Anyway, question is, please honour this FOI act request as deemed and in full and appropriately within the NHS guidelines, making sure the HR department is fully aware of my request upon receipt of this FOI,  and kept informed at ALL stages of progress from now on, and a second opinion of similar skillset at your surgical level is obtained wherever you can for my peace of mind please thank you.


Finally, as before, I wish you all peace and blessings & love and light to any and all. I wish no ill will to anyone, and know this to be true because that is what I am made of. But I do want answers now. And this is your last opportunity to treat me as you would wish to be treated if you were in my shoes with your loved one suffering as mine is. If you need longer let me know and I will extend the grace period, so as to ensure the very best of outcomes for the wonderful woman I fell in love with all those years ago.

Thank you for reading this, and god bless you all.
May Peace & Blessings & Prayers be with you.
stuart.

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Letter to Consultany - 03

 

2020 10 04 Emmas Letter to Consultany – forwarded to Worcs HR for their ref

I had my Laparoscopy Operation on Tuesday 1st September 2020. I was told I would get a letter through the post within two weeks of having the operation and I still not heard anything and it been almost five weeks.

I would like to know what it is you have found and what the results was from the lab. Both me and my partner Stuart wants to know exactly what you did during the operation. We also want to know why you said you did not want to see me again.

It has been almost five weeks since my operation and I’m not getting any better. The nights are the worse. Most nights I wake up to have a pee and straight away I get a sharp stabbing pain in my right side which gets worse within half an hour of having the pee. I end up taking a Tramadol and Paracetamol and calling for Stuart to do my hot water bottle. If the pain doesn’t calm down within an hour then I take another Tramadol and Paracetamol. I am not sleeping much during the night either due to the pain I am in.

There have been a couple of times where I have broken down in to tears because of two reasons mainly. One being the pain I am in at the time and second because I am really fed up of all of this now to be honest with you.

I am still not back at work. I still cannot pick up my son. I am still struggling to sit down on a chair or the sofa for a certain amount of time. Standing is also still an issue. I can only do little jobs around the house but even then after about 10-15 minutes I am in severe pain and I am in bed for the rest of the day.

My bedroom is still my house. I hardly ever go downstairs and spend time with my family. Stuart stills does everything around the house, for example, cooking, cleaning, washing and looking after our son.

I went out for the first time on Wednesday 30th September 2020. I went to town, I was only out for an hour then I had to spend the rest of the day in bed again resting because I was in so much pain from walking. I am also dealing with the pain the day after. Since that day I have used my crutches nonstop. The pain has been constant. Sometimes it just a light pain and other times it has been a severe pain. All on my right side again.
I get sore from just moving around or walking around the house. I noticed that if I am in really bad pain I am leaping.

You said that you could not find any Endometriosis, so if I have not got Endometriosis then what is wrong with me. You did say you found two little white bits, which you cut off and sent to the lab. What was they and could they grow back.

I am not taking the Tramadol as much during the day that is because I am in bed resting most days. I am taking at least 2 Tramadol in the night. I have noticed that if I do not take Tramadol for a few hours and I am moving about the house the pain kicks in and it’s a severe sharp stabbing pain.
I still cannot touch my belly or right side because it is so tender and sore.
I am defiantly slowly going back to the way I was before the Operation.

Is there another specialist or route I can go down to help me get past all of this pain and go back to the way I was last year. I am 30 years old, I do not want to be on tablets for the rest of my life. I have said on a numerous occasions that I would like to have a Hysterectomy but nothing has been done or discussed about it. Can you please but this down on my notes and consider it for the future.

I would like to say I do constant to you speaking to Stuart on my behalf because he will understand you better than me.
Please I would like some feedback and help to go forward with my condition. Thank you for taking the time in reading this and I hope to hear from you very soon either by e-mail or by post. Mrs Emma Goode 35 Archer Road, Redditch, B98 8DN. 07383190492. Emmasmith90@yahoo.com. 21/02/1990

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RCOG response

 2020 10 20 – RCOG response to our letters forwarded to Worcs HR Dep for their reference

 

Emma Smith <emmasmith90@yahoo.com>
To:James Stuart Morris
Sat, 21 Nov at 21:09

 

 ----- Forwarded message -----

From: Complaints <complaints@rcog.org.uk>
To: 'emmasmith90@yahoo.com' <emmasmith90@yahoo.com>
Cc: Complaints <complaints@rcog.org.uk>
Sent: Tuesday, 20 October 2020, 13:57:05 UTC
Subject: Your letter received 20th October 2020

 

Dear Mrs Goode

Thank you for your letter which was received today at the Royal College of Obstetricians and Gynaecologists, (RCOG), and was passed to me in the Complaints Department.  RCOG works to improve health care for women everywhere, by setting standards for clinical practice, providing doctors with training and lifelong learning, and advocating for women’s health care in the UK and worldwide. 

If you would like to let me know if there is any specific response from RCOG in relation to your letter I can look into this further.  I also refer you to our Complaints Policy, found on our website.  However, complaints which relate to the conduct of a College member whilst delivering work not directly associated with College activity will in the first instance need to be raised and processes concluded locally, before the Colleges Complaints policy can be invoked.  From what you have indicated in your letter, I would suggest that in the first instance you follow up with the Trust where you had the operation to get the answers to your questions.  I have assumed from your letter that it was addressed to the surgeon and copied to RCOG.

Once the matter has been investigated and concluded by the Trust we could then review if this should be progressed through our Complaints Policy. 

 

I hope this is helpful to you.
Complaints Officer
         

·          

·

We sent them a letter initially due to the switch on, and have penned them in ever since.

And initially, it was never my intention whatsoever to make a complaint.

stu

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Stu&Em UC update - 01

 

2020 09 14 – emmas universal credits update forwarded to worcs HR Dep for their ref

 

I had a Laparoscopy Operation on Tuesday 1st September 2020. To find out if I have got Endometriosis.

They showed me the photos and said that I have not got Endometriosis.

They said that they did find some little white bits which they have cut out and sent off for testing. The consultant said that I will get the results in a few weeks. He had also said that he will no longer need to see me.

My condition since the operation has been up and down.

I am still taking Tramadol everyday, most days it is at least 4 Tramadol.

I am still using my crutches.

I am still relying on Stuart to do stuff for me.

I do hope 1 day soon this situation I am in will be solved and I can be back to the way I was but I can not see it happening any time soon.

I am still recovering from the operation though.

I am still on the sick from work.

I have also decided that if nothing has changed in the next few weeks then I am going to write my consultant a letter and get him to see me with Stuart there at the same time, or ask him who i need to see next.

I do also want to say my feelings lately have been all over the place. I have not let Stuart know because I don't want to upset him, or get him worried. But I have been feeling lonely and depressed about everything I am going through. There have been a couple of times where I have cried my self to sleep.

I broke down into tears earlier because I realised how bad my situation is and how much my condition has changed my life.

It still upsets me that I can not do stuff around the house or look after our son. John is now make at Nurserty and Stuart has to take him and pick him up while I am at home resting in bed. I would love it if I could take John and pick him up. I Would love it if I could go out and do stuff.

The only thing that keeps me going is hope. Hope that one day I will be back to way I was a year ago.

As soon as I know more on whats going on I will let you know.

Thank you

 



2020 09 14 – stuarts universal credits update forwarded to worcs HR Dep for their ref

hi universal credits my update regarding emmas operation 1of2

i thought it was time to update you regarding our situation and emmas health.

 

it has been 2 weeks since emmas operation, and she was warned that the recovery time would be 4 to 6 weeks. after getting home she has pretty much lived in her bedroom just like she did before to be honest.

 

she was told by the surgeon that he didnt actually see much in the way of endo (i presume the sticky stuff sticking to all the organs), but did find two 1mm white spots sent off for analysis. emma did say though she spent 90minutes in the theatre allthough the average is 45minutes. i will send a copy of this to the surgeon, and later will email them asking for a detailed description of what was done and what was found so i can get a better understanding of what was done and what we can do next.

 

so, this morning when i was nagging my gorgeous girlfriend to write something down for you guys, after 10minutes of near shouting she began crying and after i took john to nursery, we sat and had a little chat, and thats why you are getting this little update. this one is from my perspective.

i can tell emma is anxious because she wants to be well again and back at work, and i cant wait for that either because im getting ratty with her and john especially, and emmas fed up with being in bed all the time and in pain, but honestly we are and will cope and get through this, i will make sure of that. (ps thank you for all your help. we would be homeless without it so thank you.)

 

anyway, waffling aside. for just under two weeks since emmas operation she has definatelly shown a little improvement in certain ways. she still gets me up in the night to empty her pee jug, make her a fresh hot water bottle and a cup of coffee, while she takes another tradamol, so most nights she still relies on them to get some sleep, BUT, one night couple of nights ago she never woke me, but still woke up to take a tradamol, and last night she never woke up in pain and so never woke me up either. now im not getting my hopes up but i just want you all to know exactly what we are going through.

 

and about a couple of days after the op, she has on avergae been relying on 3to4 tradamol a day (including mightime)as apposed to 5or6, something i have noticed. ALSO IMPORTANTLY, she leaves me with the impression that the main place of pain on her right side in the abdominal area is not there as much as it used to be. the main area of pain for her at the moment and since the op is around and below the bellybutton area, which as far as i am hoping is the pain from the op which hopefully will go in time.

 

as i am typing, i am talking to emma, and remembered about 3-4 days ago she was getting the usual very sensative to touch the skin around the lower bellybutton area and all the way round the sides. just gently touching her skin results in a stabbing pain where she touches. sadly that is something she has been suffering with for a while now, and doesnt look like its gone away.

emma has also occasionaly been walking without a crutch, but still careful steps and no lifting or anything too physical. once or twice she has changed john, but on a changing table, and only if i lift him up and put him down.

 

what worries me, and i have said this to emma allready, she now reminds me of where and when she was about 2 or 3 months ago, and what really worries me, is that statistically, a majority of women having this procedure, end up developing the same symptoms again, untill such time they have a hysterectimy. now this is just my feeling here and my opinion based on other womens experiences and what i have deduced for myself. i am not saying i am correct, but atleast now you know how i feel, and what is worrying me at the moment.

i was just about to write how i thought emma was a bit better since the op, and decided to ask her opinion here as i type, and her response was a prolonged ''yeaahh, but i dont think its gonna last'', and ironically, thats what i was conveying to emma this morning after we had our little tiff.

 

honestly, i think she is definatelly a little bit better, but i would be a liar if i said i think she is out of the woods so to speak. another reason why im writing this is after reading emmas written info for you on universal credits she said about maybe being back at work in 5weeks after the op because the nurse said so, i reminded her the last time she heard that and believed it, she was still in severe pain and agony.

 

also, while i am typing this, and refering to emmas note being sent to you at the same time, i didnt understand why the surgeon told emma he wouldnt have to see her again, as there should atleast be a post op review, and i will be taking this up with the surgeon in due course. if she needs to see someone else, i will be asking hime who we need to see next. as well as asking for a full report regarding what he did for my emma. it has to be pointed out i was not allowed to be by emmas side due to corona virus and i should atleast be given some guidance as to what took place. i will be asking for something in writing from the surgeon in due course.

sorry if i am typing as i talk but i atleast am trying to inform you of where we are.

 

honestly, it has only been 2 weeks since the op, and so too soon to jump to any conclusions, but nevertheless, atleast we have tried to keep you informed, and will get back to you, once i have emailed the surgeon, and received a response regarding my queries and concerns. i will keep you updated when things change and thank you.

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update by emma n stu - 04 05

 

2020 10 19 update after the op forwarded to worcs HR dep for their ref in regard to foi request

From Emma Goode Since we sent the email to Mr Rai on the 4th October we have not heard anything still. I have been looking at my emails at least 3-4 times a day. We been looking at the letter box every morning to see if we had a letter. I have had my phone with me all the time, but no phone call.

I am really annoyed that no one has got in touch at all. I want to know what is exactly going on and why am I waiting so long for answers and for help.
My condition is getting worse. My right side is still really painful and it is constant. My nights are the worst. Not sleeping much.

Notice lately my urine is starting smelling really bad and I get sharp stabbing pains in my side after I pee. I am still spending my days in bed. Taking Tramadol up to 4 a day now that is also counting the ones I take at night. Still relying on my partner Stuart to do stuff around the house and to look after our son John.

The other night I was up most of the night and by the time I fell asleep I had taken 3 Tramadol to help with the pain I was in. Last night (Sunday 18th October) was a bad night. I woke up in severe pain. I had to text Stuart to come through because of the pain I was in. Our son John even woke up and got disrupted by the situation.

I have waited long enough, been in pain long enough. I want answers please and I want them soon please. I also want to be taken to the next step. Thank you for your co-operation.

from stuart morrisjust a small update on 19-10-2020 regarding emmas condition after her operation, and having no feedback whatsoever, even after sending an email 2weeks ago. we have yet to hear anythingt all.

 

john hasnt gone to nursery today because emma had a bad and sore night last night, and i was up to deal with her a couple of times, and poor john just didnt get any proper sleep either as this has also begun to effect his sleeping patterns sad to say.

 

emma has started using 2 tradamol (i think roughly) at nights now just to get some sleep, and has started taking the odd few during the day now to get by. i can also hear her groaning from severe pain when she trys to move in bed now. and she is nearly always in bed to be honest.

 

she did try and walk with me to the nursery with her crutches once, but had to turn back after about 10minutes to go home upon me asking her how she was, as she was in severe pain and was struggling to cope with the walk

 

for PIP reference: she walked from our home to bridge over a441 to hollytrees nursery and google maps says thats 0.5miles. in hindsite it was way too much for her and she was hobbling on her crutches all the way, she wont be attempting it again.

emma and i are both noticing now she is deteriating and its getting quicker and quicker how much worse she is becoming. she is not as bad as she was before the op but it certainlly is heading that way.

 

i have made it clear that if the surgeon can do no more, then we need someone else to take a look, and i have also asked for some written feedback from the surgeon on her 90minute operation. i have also asked for contacts if we need to speak to anyone else as this has not gone away and emma is now getting worse again.

so please, can anyone out there in the nhs help us, i have begged before, and i am now begging again, please please please can someone get us someone to help us and sit down and talk to us. please read the attached for our feedback to the surgeon emailed 04-10-2020

thank you thank you thank you and all the very best to all of you. stu, emm, john.

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