Wednesday, 29 December 2021

Sunday, 26 December 2021

Universal Credits Complaint

 

Part 1 of 2

 

Emma: I have asked Stuart to help me due to the latest letter I received from Victoria (UCD579_Emma_Goode) regarding her latest decision about my capability of Work, and me feeling I have not been heard fairly.

Emma: This will be posted on both mine and Stuarts Universal Credits accounts.

Stuart: please respond in kind to any question we raise, and if you are not sure what we are asking or saying then please let us know thank you.

Stuart: after 5 working days with no response to Emma’s grievances, we decided together to take this next step.

Emma: I have uploaded my latest sick note dated from 22/12/2021 to 31/01/2022. I will be continuing to upload these every time I get one.

Emma:  I know that the GP Mr Mohammed Naiwaz has lied about the points he put in the medical Report.

Emma: I have noticed that you have just copied and paste from the medical report to the assessment (UCD584 Emma Goode).

Emma: I do believe that you have taken the GPs word over mine.

Emma: I do want a second opinion on everything that I have sent, Victoria comments and the GPs medical report.

Emma: I also still give you full consent to come over to my house and see what I am like day by day because I still don’t know how you can assess someone just by a telephone conversation and not see their situation at home.

Emma: Have you received all the paperwork and the feedback that you have requested? We sent it through the post first class recorded delivery on Tuesday 14th December 2021. Can I please have a reply to this? I did take it in to Stephen but he said he did not know who to give it to.

Emma: I have sent you everything twice about my condition and situation. And yet you still think that I am capable to walk to the job centre for a meeting or go on training courses. I cannot walk at all.

 

               

Part 2 of 2

 

Emma: If you still want me to attend these meetings at the job centre then you will need to provide a wheelchair for me. Stuart is more than happy to come pick one up, bring it home and take me to the meeting.

Emma: I am willing to come to the meetings but not without a use of a wheelchair. Last time I walked and it was extremely hard and painful for me. I had to stop twice walking back home because of the pain I was in from all the walking. I also spent the next 3 days in bed suffering in pain from it more than usual.

Stuart: I will word this differently to Emma. We both want to show WILLING, and will do anything to honour all your requests, but Emma walking all the way to your office will cause me concern for her safety and wellbeing, and I am begging you not to do this. Instead, if there is someone or somewhere in Redditch Town Centre that will hire us a wheelchair, I will gladly go and get it, pay for the hire, make sure emma gets to your requested appointments, and will get her back safely and responsibly. I did consider dial a ride, but I don’t know if they can get close enough to your office. If there are other options please let us know. If you however insist on her walking there, I will have no other option but to seek outside legal advice. I feel she is not fit to walk to your office.

 

Stuart: I believe that Mr Mohammed Naiwaz has lied and made up evidence and information.

Stuart: As per a Licensed GP’s oath to the patient I now believe the GP should be reported or investigated by the relevant regulatory authorities, as I believe a gross error of judgement as taken place, possibly worse.

Stuart: I am now requesting a formal complaint procedure by universal credits to do with why Victoria or the gp or UC didn’t to reply or answer any of Emma’s concerns or grievances in her info regarding the GP medical Report and the assessment.

Stuart: I also believe Victoria based her new assessment on the same gps info, and I am again informing you I believe some of it to be made up and lies.

Stuart: how do we start an investigation or formal complaint please? Who do we talk to or go to?

Stuart: who else did the gp speak to regarding Emma’s condition? Please supply notes or minutes, statements, recordings, or whatever info you can.

Stuart: we should be reviewed again, by a competent and honest gp, with a renewed telephone call with Emma, and me there if you so wish. But I will only involve myself now by invitation.

Stuart: we have requested help from home help from Worcester County Council help, to help us with john at school, and Emma’s ongoing condition, and they will be coming over on Wednesday 5th January 2022 at 10am.

Stuart: I would like to know if we are entitled to legal aid and where do I have to go online to get more info. I have come to the conclusion we may need some legal assistance in the treatment of Emma’s condition going forward.

Merry Christmas and a Happy New Year
Emma and Stuart

CLICK TO OPEN FILE

Thursday, 16 December 2021

2021 12 14 Note to Universal Credit

 

Mrs Emma Goode, 35 Archer Road, Redditch, B98 8DN, 07383109492, 21/02/1990, emmasmith90@yahoo.com

Added to the paperwork after seeing the Jobcentre.

 

Following the request from Victoria at the Lowestoft Service Centre. I printed out and brought in all documents and letter for Universal Credits. When I got to my meeting today (Tuesday 14th December 2021 at 9.40am) I was told that they did not know what to do with the paperwork and can I instead email it all over.

Below is a copy of what Victoria sent to me on my Journal. She sent it on Tuesday 7th December 2021 at 3.11pm.

I got outside and told my partner about this and he was not happy at all that we spent all night last night going through all the paperwork and printing out the paperwork and wasting pieces of paper and cartridge (my partner had to change the cartridge over as the other one ran out) on stuff the jobcentre did not want in the end. We are now going to send all of the paperwork through the post by recorded delivery and also email it all over to you as well. The paperwork will be posted before this message appears on UC journal.

I would also like to add that I did not see the point in the meeting if it was just to put a face to a name and not take my paperwork you asked for. I had to take 2 lots of tablets before I came to the meeting and now I am home in excruciating crippling stabbing pain again.


Hello Emma, 

…any further information you would like to give regarding the mandatory reconsideration request that you have not already told us about...

… am unable to access these and would need to see the paper copies that you mentioned could be provided.  These can either be taken into the Jobcentre or if it is easier can be emailed to…

…if you are taking it into the jobcentre please leave a message to say this has been handed in...

Many Thanks
Victoria
Lowestoft Service Centre
7 Dec 2021 at 3:11pm

 CLICK TO OPEN FILE

Monday, 13 December 2021

UC Medical Assesment Feedback

Mrs Emma Goode, 35 Archer Road, Redditch, B98 8DN, 21/02/1990, 07383109492, emmasmith90@yahoo.com

On 30th November 2021 I received a copy of your documentation about how you have come to the decision that I am able to go back to work. I have also received a copy of my medical report made by Mr Mohammed Naiwaz on the telephone conversation we had on the 27th August 2021.

You stated that all of the information you looked at was based on the Work Capability Assessment telephone conversation I had with Mr Mohammed Naiwaz on 27th August 2021 and any other information, facts and evidence you had. I would like to inform you that some of the information you was given from that telephone conversation on 27th August 2021 by Mr Mohammed Naiwaz was incorrect and not what I said at all.

Below is my notes to your decision and the reason on why I think you have made the wrong decision thinking that I am able to go back to work in the condition I am in at this present time.

 

You stated and I quote:

"You will go for a walk locally to get out once a week. You walk at a slow pace using a crutch. You will walk for 10 minutes and then rest for around a minute due to abdominal discomfort. You will then walk again for a further 10 minutes."

This is completely false and my partner agrees with me. I have never said that I go out for a local walk once a week. I cannot go for a walk anywhere and I do not go out once a week. I actually do not go out at all. I always stay in. I never go to places where there is a lot of walking involved e.g. town centers. I only go to places where there are plenty of seats like a play center. In fact my meeting on Tuesday 14th December 2021, 9.40am at the Job Centre in the Kingfisher Shopping center will be my first long walk since October last year when I walked with my partner to take our son to Nursery. I got halfway down there and I had to turn round and come back home as I couldn’t finish the walk due to suffering so much pain in my abdomen. My partner said to me later on that day that if I ever decided to walk to the Nursery or the school again he would refuse to come with me.

When I do have to go out I ask my mother-in-law to drive me. I walk across the road from my house to get into her car. I struggle sometimes to even sit in her car as I am in pain from just walking across the road. If my mother-in-law cannot take us to places we then have to call for a taxi, even if it is just to go down the road to school. The one time in the last year we went to our friend marks house on a Saturday night we had to get my mother-in-law to come and pick us up and bring us back home virtually door to door.

My partner always the one who goes out to town to get my Tramadol Prescription from the chemist. He also goes and gets the gas and electric and all other essential’s we need e.g. toiletries.

 

You stated and I quote:

"They were out for several hours"

This is completely false and my partner agrees with me. When I do go out it is always with my mother-in-law in her car and my son and we go to the play center and the most we are out is 2-3 hours top. If I have to go to the school for a meeting I always go with my partner and we have to get a taxi to take us down there and to bring us back and the most we are out for is half an hour to 45 minutes tops. When we do go to our friend’s house on a Saturday night we are only there for 3 hours and when we are at there I am constantly sitting on his sofa resting with my hot water bottle. Every time I do go out anywhere I always have to take a Tramadol and Paracetamol before I even leave the house and I am always taking my tablets with me. Every time I come back home from being out I am straight back to my bed resting and taking tablets as I suffer so much pain. My partner also has to do my hot water bottle as soon as we come home.

 

You stated and I quote:

"You will take your time using the stairs as this can give you some abdominal discomfort. You use the hand rail and can manage the whole flight without stops"

I always have to take my time when I am walking up and down the stairs as I am in constant pain in my right side abdomen. When I am walking down the stairs I am always using the hand rail, and my crutch taking the stairs one step at time. On the way back up I am always holding on to the wall and using my crutch and again taking one step at time. When I am going up or down the stairs I do sometimes have to stop halfway as I am always suffering with excruciating stabbing pains in my right side abdomen. But I always use my crutch.

 

You stated and I quote:

"You are able to get out of bed independently."

This is true but I would also like to add that I do I have trouble getting out of bed and I have to hold on to the arm rest that my partner had bolted on to the side of the bed to help me get out of bed.

 

You stated and I quote:

"You will take pain killers when you wake up in the morning"

I always have to take a Tramadol and a Paracetamol within the first half an hour of waking up every morning because I always wake up in excoriating pain all across my abdomen. I have also lately noticed that I am suffering more and more pain in my right side abdomen when I wake up in the morning.

 

You stated and I quote:

"You will use the bathroom and clean your teeth every day. You will use the toilet. You no longer need to use a jug to empty your bladder. You will have a bath twice a week. You are able to get in out of the bath tub independently."

This is completely false and my partner agrees with me. My partner believes this person may be actually making things up now. The times I use the bathroom is always to have a bowel movement, have a bath, or to empty my bladder. I would like to state though that I have a bath at least once a week as I suffer so much pain and it is very difficult for me to get in and out of the bath all the time. When I do have a bath I always have to hold to the side of the bath and the hand rail my partner put up on the wall. Every morning my partner has a shower and when he dries himself he uses a terry towel which he then gives to me when it is damp for me to use to wipe myself down with to clean the main parts of my body. I then put tea tree oil under my armpits to stop them smelling. I would like to state that I have said this from the beginning and it has never changed. I do not shower anymore as I cannot stand for so long in the bath.  It is very rare that I will stand at the bathroom sink to brush my teeth. I do not stand at the sink every day. When I do want to brush my teeth my partner always brings the stuff (toothbrush, toothpaste, cup of water and a jug for me to spit in) to me in bed and he will sit on the edge of the bed till I have finished brushing my teeth and then put the things away for me and get rid of the water. I have never said that I have stopped using my pee jug. I constantly use it. I use it every morning when I wake up. I use the pee jug throughout the day if I really need to but definitely when the pains is really bad and I cannot walk to the bathroom which is right next door to my bedroom. I also use it throughout the night when I wake up for a pee. My partner always empties my pee jug (Morning day and night). My partner has just said he honestly cannot remember a day when he didn’t have to empty the pee jug so yet again, his comments is not true.

Sometimes, I have to get my partner to come and help me put on or pull up my knickers and trousers as I just can’t bend over.

 

You stated and I quote:

"You will help with house work when you can. You will help with the washing up, putting the dish away, and wiping surfaces. You will do this several times a week."

I have never said that I do the housework several times a week. If I did do that it will literally cripple me forever because of all the extreme excruciating crippling stabbing pains I suffer with all the time throughout the day. It is very rare I do the housework. My partner does it all by himself all the time, every day. If I do some of the housework, I probably do it for about 5 minutes then I have to stop and my partner has to take over (like putting dishes in the sink and leaving them for my partner to do) as I always suffer in excruciating pain afterwards. I always find it difficult to get around the house. I cannot stand for more than 5 minutes. I cannot bend over or kneel down at all anymore. When my mother-in-law comes over with our shopping it is always my partner who brings it in from her car and puts it all away. That is one way she helps us. My partner also does all the preparing, cooking and serving our meals. I am rarely in the kitchen helping out because I can only last for 5 minutes and I'm back to resting in bed with my hot water bottle and taking tablets due to the excruciating stabbing pains I suffer from it all.

 

You stated and I quote:

"You will make yourself a cup of tea throughout the day. You are able to lift a 1 litre bottle of milk. You will make a hot drink for your partner also."

I have never said that I make myself a cup of tea throughout the day. I am rarely in the kitchen making myself or my partner a hot drink. My partner makes us a hot drink all the time throughout the day and brings mine up to me in bed. I probably make a hot drink maybe twice a week that it. I cannot even bend over in the fridge to get the milk out. My partner always leave the milk out on the side throughout the day just in case.

 

 

 

You stated and I quote:

"You will cross stitch in your spare time and enjoys this. You will sit and do this for 2-3 hours at a time without having to stand"

I am constantly in bed resting throughout the day when I do my cross stitching. I spend about 7-8 hours a day doing this. I also cross stitch because one I do enjoy it but also it keeps my mind off the pain and stops me being bored while I am in bed all day every day, and it’s all I can do at the moment. I do not sit and cross stitch.

 

You stated at the end of your document that the decision was made by using the following regulations:

Regulation 40 of the Universal Credit, Personal Independence Payment, Jobseeker's Allowance and Employment and Support Allowance (Decisions and Appeals). Universal Credit Regulations Schedules 6, 7, 8 &9.

I would like to know what this is and I would like a copy of your Universal Credits Regulations please thank you.

 

Below is the notes I made from going through and reading my medical report:

Please can you tell me how you can make a medical diagnose from just a telephone conversation.

I would like to request a second opinion on what Mr Mohammed Naiwaz has put in his medical report to you. My partner has said he will definitely be responding as well to this if my request is refused, as my partner believes this person was making some things up, perhaps even avoiding the truth.

No one has physically come out to my house and assessed me properly or witnessed what I have to go through all day every day. I have already given you my full consent to come to my house for the day and assesse me, examine me and actually witness my day to day living. You have no idea on what it is like for me day in and day out. I mean you literally cannot just go by what a Medical Practitioner has written down on his medical report without even seeing me. I am constantly resting in bed. I am bed bound all day every day. I am constantly using my hot water bottle and taking tablets.

 

In the Medical Report it states the following:

Medication:

Ibuprofen (anti-inflammatory painkiller) taken as required every day 200mg dosage once a day

Paracetamol (for pain relief) taken as required every day at 1g dosage three times a day.

Tramadol (for pain relief) taken as required every day at 50mg dosage three times a day.

I am taking Ibuprofen twice a day. Tramadol and Paracetamol at least 4-5 times a day sometimes 6. If I am having a good day I am taking Tramadol and Paracetamol 2-3 times. But this is becoming very rare now.

 

 

Medical Report states and I quote:

"She had a coil inserted at the time of the operation. She feels the operation did help but feels her pain is getting worse again over the last 6 weeks."

I had my operation on 21st June 2021 to remove all of my Endometriosis. The coil was inserted and definitely helped with the bleeding. I no long have periods. I do not think that the operation has helped with my pains at all. In fact since having the operation I have gotten a lot worse. Me and my partner both believe that I am now back to the way I was before I had my first operation back in September 2020 where I had a biopsy done to confirm that it is Endometriosis. My partner has always suspected there is a physical injury inside me somewhere, and I am beginning to believe that as well now.

 

Medical Report states and I quote:

"She is taking pain killers which helps to reduce the pain a little."

I am taking at least three Tramadol’s before the pain is bearable now.

 

Medical Report states and I quote:

"She reports the pain is worse when she opens her bowels or has a full bladder"

This is false I did not say that at all. I am in excruciating crippling stabbing pain all across my abdomen every time I have a bowel movement. I am in excruciating pain when I stand to have a pee in my jug. I have to hold on to the side of the shelf for support. Lately when I do have a bowel movement I am bleeding from my bum hole afterwards.

 

Medical Report states and I quote:

"Diagnosed with a heart murmur aged 2 years old."

This is completely false. I never said that at all. I said  I was diagnosed with a heart murmur at 2 days old.

 

Medical Report states and I quote:

"Evidence reviewed includes the Questionnaire, previous report, appointment letter, hospital correspondence and POID2, client pain diary, emails and correspondence."

I would like to know if Mr Mohammed Naiwaz has been in contact with either my GP or my specialist how come I have not been informed about it. I would also like a copy of all of their conversation they have had discussing my case. What is POID2?. What appointment letter is Mr Mohammed Naiwaz referring to? I would like a copy of all emails and correspondence made between Mr Mohammed Naiwaz and other third parties that has been involved with my case.

 

 

Medical Report states and I quote:

"The main reason for leaving work was physical health"

I did not have choice to leave work. The regional Manager of the Bodycare I was working at said that she had to let me go due to my physical health and because I have been on the sick for a whole year.

 

Medical Report states and I quote:

"She reports she is now sleeping well following her operation. She no longer wakes up in pain"

This was true for the first month or so but sadly I am now slowly going back to waking up in the night again. I am maybe waking up once or twice a week at the moment but I feel like I am going back to the way I was before the operation. I wake my partner up by a text as I cannot walk across the landing to the other bedroom due to being in so much pain. My partner always does my hot water bottle and emptied my pee jug. I am taking at least 2 lots of Tramadol and Paracetamol in the night before I am able to go back to sleep. When I do go back to sleep I am still suffering in pain. There has been a couple of times where I have woken up in the night and stayed awake for most of the day as well as I cannot fall back to sleep due to excruciating pain I am in. I do have to have a nap in the day time to try and catch up on the sleep I have lost the night before.

 

Medical Report states and I quote:

"Her partner will wash and dress her child"

My partner looks after our son all day every day. He takes him to school and picks him up. He cooks our son meals and make him drinks. He baths our son every weekend. On the school days I do go downstairs and dress my son for school but I am constantly sitting on the sofa while I am dressing him and even then I am constantly suffering extreme pain and it does take me some time to get him dressed. My partner has to stand at the sink with our son and help him brush his teeth as I cannot stand at all in the mornings. My partner always get our son dressed and ready for bed every night. My partner is the one who mostly dress our son at the weekend. I sit with our son every night and do his homework with him on the sofa but then I am straight back upstairs resting in bed due to suffering pains while sitting on the sofa. It is very rare I play with my son now because I always end up in pain straight after and for days afterwards.

 

Medical Report states and I quote:

"She has been going out in the last 2 months following her operation"

I did not say this. Since my operation back in June I have probably been out at least 9 times all told and every time has either been in my mother-in-law’s car or by a taxi. My partner thinks this slanderous.

 

Refer back to my pain diary. I have gave you the last 2 months of my pain diary. Dated from 1st October to 30th November 2021. My pain diary details everything that I have mentioned in this letter.

 

Attached to this letter is all my documents that we think you need. They are listed below:

Pain Diary – 1st October to 30th November 2021

Letter – Telephone Conversation with Miss D Ghosh 7th January 2022

Letter – Miss D Ghosh replying to my letter from October 2021 dated 19th November 2021

Letter – To Miss D Ghosh about my current situation dated Sunday 1st August 2021

Letter – From Miss D Ghosh confirming the tissue removed from my operation was Endometriosis

Letter – To Miss D Ghosh about my current situation dated Saturday 4th September 2021

Letter – From Miss D Ghosh replying to my last letter

Letter – From me to Universal Credits dated 14th October 2021

Letter – From my partner to Universal Credits dated 14th October 2021

Letter – From my partner to Royal College of Obstetricians and Gynecologist dated 15th October 2021

Purchase List – List of my Tramadol Purchase dated from 20th April 2020 to 15th October 2021

Statement – From my Mother-in-law dates 17th October 2021

Statement – To Universal Credits from me about me not being fit for work dated 19th October 2021

Letter – From Miss D Ghosh replying to one of my letters about my current situation dated 10th November 2021(sorry the printer was running out of ink on this one. If you have problems reading it we can email it to you).

If you need any more documents please let me know and we can send them to you by email or my partner can bring them into the job center. If you need any of these documents emailed to you please let me know.

 

I definitely want a second opinion on all of my documentation and reports that has been made by Mr Mohammed Naiwaz and any other third parties that has been involved with my case. Both me and my partner do believe that a lot of lies has been made here and it does need to be looked into more probably.

 

I am still going by what my specialist said in one of her letters by waiting till the 4 months is up before I need to speak to her again which is on January 7th 2022 by a telephone conversation. We will be asking her to be referred to whoever she thinks is the next best person to see.

 

Thank you for Co-operation and I look forward to hearing from you in the near future.

 

Mrs Emma Goode

 

CLICK TO OPEN FILE

 

Monday, 29 November 2021

DWP UC85 Medical Report Form for Work Capability

 Emma Goode 35 Archer Road Redditch B98 8DN

29 November 2021

Dear Emma Goode

 Following my UC journal message to you today, please find enclosed a copy of the UC85 Medical Report Form following your Work Capability Assessment on 27 August 2021 as previously requested.

If you have any further questions, please either contact us on the above telephone number or via your UC journal.

Yours sincerely

Universal Credit Lowestoft Service Centre

CLICK TO OPEN FILE

Friday, 19 November 2021

Ghosh response to emma

 DEPARTMENT OF OBSTETRICS AND GYNAECOLOGY

Consultant: Miss D Ghosh : Charles Hastings Way Secretary: Stephanie Lloyd Worcester Direct Line: 01562 513025 WR5 1DD E-mail: stephanielloyd@nhs.net wah-tr.endometriosis@nhs.net

Our Ref: DG/SJL/CH Typed Date: 19/11/2021 NHS No: 6106007306 Unit No: 4440496393

CE: Private & Confidential Mrs Emma Jane Goode 35 Archer Road Redditch Worcestershire B98 8DN

 

Dear Mrs Goode

Thank you for your letter posted October 2021 regarding an update on your current condition. | am again sorry that you are suffering with your symptoms and things have not been better since your surgery

Again | will emphasise that you do have endometriosis, which has been confirmed at laparoscopy and following resection of the endometriosis at histology. Unfortunately endometriosis is a condition that can be verydifficult to treat and despite fully resecting all the visible endometriosis it is clear that this has not helped you. There may of course be another cause for your pain, but if there is this is unlikely to be gynaecological in origin.

It is not my place to comment on whether you are physically or emotionallyfit to resume work and unfortunately this assessment will need tc be done by your general practitioner.

 If you refuse to believe that your symptoms are caused by endometriosis, then you will need to be assessed by your GP to exclude other potential causes for your pain. | would be more than happy to have a telephone consultation with you to discuss this further. Please contact my secretary if this is something you wish to proceed with.

CLICK TO OPEN FILE



Wednesday, 10 November 2021

Gosch Gyno response

 DEPARTMENT OF OBSTETRICS AND GYNAECOLOGY Worcestershire Royal Hospital Consultant: Miss D Ghosh Charles Hastings Way Secretary; Stephanie Lioyd- Worcester Direct Line: 01562 513025 . WRS5 1DD E-mail: stephanielloyd@nhs.net wah-tr.endometriosis@nhs.net


Our Ref: DG/SJL/CH Typed Date: 08/10/2021 NHS No: 6106007306 Unit No: 4440496393 


CC: Private & Confidential Mrs Emma Jane Goode 35 Archer Road Redditch - Worcestershire B98 8DN Dear Mrs Goode.


 am sorry that you are still having difficulty with pain and bleeding. If you request that - your Mirena is to be removed, despite my advice, then please see your GP who can remove it without you having to attend a hospital for this.


Many thanks.
Yours sincerely fo\ Miss Donna

Ghosh BSc MBBS MRCOG Consultant Gynaecologist and Obstetrician - Minimal Access and Endometriosis Specialist

CLICK TO OPEN FILE


Tuesday, 19 October 2021

Statement about my pain and what I have to go through every day

 As it is difficult to give everyone all the bits of information they need. I have created website called www.nomoreendo.com. It has all of my documents and pictures on there from the past year and 10 months. There is a link at the bottom of each post where you can download the documents you want.

CLICK TO OPEN THIS FILE

 

This statement is being sent to Universal Credits, PIP, St Stephens Surgery, Miss D Ghosh, Royal College of Obstetricians and Gynaecologists.

 

Statement for UC about my pain and what I have to go through every day.

 

Q1) I did ask you in my recent letter to Universal Credits, for a copy of all of my notes and discussions you have had that helped you come to this decision.

Q2) I would like a copy of my full assessment report and would like to request a written explanation as well please.

 

Both me and my partner agrees that I am slowly going back to the way I was back before my first operation last September. As I am sitting talking to my partner and going through all my old notes. I have realised how much my health as gone downhill over the past year and a half.

I am constantly bed bound every day. Everyday my partner brings me coffees, teas and food up to me in bed. I always eat my meals in bed. It is very rare I eat my meals downstairs at the dining room table. I am always using my hot water bottle, which my partner refills fore me all the time, when I ask him to.

My partner has always made sure I have got everything I need in my bedroom and that it is at easy reach for me, so I don’t have to stretch up and hurt myself.

I still wakes up at night sometimes in chronic pain. I have to wake my partner up by a text as I cannot walk to the other bedroom due to the pain. My partner empties my pee jug and does my hot water bottle. I have to take at least 2 Tramadol’s in the night to help ease the pain and to try to get back to sleep. I have trouble most nights getting back to sleep, even when I am really tired because the pain is so bad and its makes me uncomfortable to lie down. Sometimes when I have to pee in my jug I have to hold on to the side of the surface for support.

I am excruciating pain every morning when I wake up. I have to take Tramadol and a Paracetamol within the first half an hour of waking up in the morning. My partner empties my pee jug, does my hot water bottle and makes me a cup of coffee every morning.

My partner gives me a damp cloth every morning after he showered, for me to use, as I struggle to bath or shower every day. I mostly have a bath as I cannot stand in the shower for too long. I have a bath once maybe twice a week.

I am always have to use my crutches to get around the house. I walk very slowly taking tiny steps. I walk with a limp. I suffer so much pain while I am walking around the house. Sometimes when the pain is really bad I walk like an old lady hunched over in pain. I have to take the stairs one step at a time. Holding on to the bannister or the wall while I am walking up or down them. Every time I am up and about I am always holding my belly.

My right side abdomen has been very painful again lately. I have problems bending over, sometimes I can’t and I have to get my partner to help me, e.g. pulling up my knickers or picking up something off the floor. I cannot kneel down at all or go on my hands or knees.

Me and my partner hardly ever have sexual intercourse. When we do it not for long as I suffer so much pain afterwards.

I am now slowly going back to taking at least 5 Tramadol a day again.

Both me and my partner have noticed that my eating habits have gone down again. I am not eat as much as I used.

I suffer excruciating pain in my abdomen while I am having a bowel movement. I have been bleeding on and off since July, but these past couple of weeks I have hardly bled at all.

I don’t go out at all now. If and when I do go out I always to go in my mother-in-law’s car and we have to go somewhere where I can sit down and rest as I cannot walk very far.

I suffer after getting my son ready and dressed for school every morning. I don’t take my son to school or pick him up. My partner has to do that. My son always ask me to walk with him to school but I have to tell him I can’t as I cannot handle the walk. The time I had walked to school because of a meeting me and partner had to go to, I was bed bound for at least 3 days in excruciating pain, waking up each night as well.

I hardly ever play with my son. When I do, I always end up in pain and bed bound for days afterwards. I don’t feel like a mother at all to my son because I am always resting in bed. It upsets me when I have to tell my son that I cannot do things with him because I am in pain. It upsets me when I see him upset and he walks away sad. He even says he is sad now. I cannot pick my son up at all.

I have to sit with my son on my bed when I am helping him with his homework every night, as I cannot sit at the dining room table for too long.

If I do go downstairs for bit, it is not for long, then I am back upstairs in bed resting. I cannot sit or stand for too long. It is very uncomfortable for me to rest on the sofa. I have to come upstairs soon after my son and partner comes home from school, as I suffer in so much pain from sitting and relaxing on the sofa, even just for a few minutes. When my dad comes over on a Friday night, I always makes sure I got my hot water bottle with me when I go downstairs to talk to him for the evening. Sometimes I do have to go up to rest in bed because I am in so much pain or my dad leaves early so I can go and rest. I sometimes go downstairs when my mother-in-law comes over, but after a while I do have to go up and rest in bed due to the pain. Most of the time when she does come I have to stay resting in bed because of the amount of pain I am in. This also happens when we have our friend over on a Thursday afternoon.

I suffer a lot of excruciating stabbing pains all across my abdomen and belly every night when I am getting myself ready for bed. The pain carries on when I am settled in bed for the night. My partner always has to do my hot water bottle. I have to take a Tramadol, Paracetamol and an Ibuprofen as soon as I am in bed.

I have noticed that the past few weeks I get very angry with my partner and son when I am suffering in so much pain. Its not mine or their fault that I am suffering so much. For some reason when I am really suffering in pain I just lash out at them for no reason what so ever.

My partner has to do all the housework and cooking. If I try and do it I always suffer in chronic pain afterwards and I am bed bound for days. Activities around the house is very hard for me to do, so I just don’t do them. My partner goes to town on his own to get, Toiletries, Gas and Electric, my Tramadol Prescription, and other essentials. My mother-in-law does our food shopping for us twice a week so my partner doesn’t have to leave me alone with my son as I don’t think I could cope.

I would like you to know as I am typing this you I am in excruciating pain just from sitting down in a chair for as long as I have and that will be bed bound for the rest of the day. This is another example of how I am suffering.

Both me and my partner are happy to go along with the specialist’s advice, on waiting till the 4 months are up before going on to the next step or making the next decision about my health.

 

I would like to give you more detail on my health, but as you have not given me a way to upload documents or pictures to your site, I have had to put them on my website we have made to do with my ongoing health problems, at www.nomoreendo.com.

 

I have put links in below for you to go straight to each subject matter. Please use the web links and the information in them as part of my information I am giving to you, and you need to know about.

As you read and look through each link you will get a much clearer view on my health and my ability.

 

There is a witness statement made by my mother in law in which she explains how my situation. My mother in laws statement
http://healingemma.blogspot.com/2021/10/emmas-mother-in-law-statement_17.html

 

There is also a part of my diary which is dated from the 1st October to 15th October 2021. In there I explain how many Tramadol I am taking a day and at what times. I also explain on what my partner does me day by day. It is exactly how my life is day by day and how it is never changed because I am bed bound all the time. If you want to see more from this year please ask.
Pain Diary dated 1st October to 15th October 2021
http://healingemma.blogspot.com/2021/10/emmas-pain-diary-1st-october-to-15th.html

 

There is the letter that me and my partner sent to you recently. There is also a letter which my partner has sent to the Royal College of Obstetricians and Gynaecologists explaining his views on my Endometriosis diagnosis.
Stuart’s letter to Royal College of Obstetricians and Gynaecologists
http://healingemma.blogspot.com/2021/10/letter-to-royal-college-of.html

 

Stuart’s Last Notes sent to UC
https://healingemma.blogspot.com/2021/10/hi-uc.html

 

Emma’s Last Notes sent to UC
https://healingemma.blogspot.com/2021/10/emmasstatement-to-uc-about-my-current.html

 

There is a list of my Tramadol Prescriptions dated back from the 20th April 2020 to the present day.  I get 60 Tramadol every time. It shows how many times my partner Stuart as gone to the chemist to get them for me. He also picks up Paracetamol and Ibuprofen for me at the same time.
http://healingemma.blogspot.com/2021/10/emmas-prescriptions-from-chemist.html

 

There is pictures of what my belly looks like now after 5 years of having a C-section, Ectopic Pregnancy and 2 keyholes surgeries to do with my Endometriosis. It shows how my belly has never gone down and how it still looks like I am pregnant. I am constantly in pain all across my abdomen and belly. Pictures of My belly.
http://healingemma.blogspot.com/2021/10/pics-of-my-endo-belly.html

 

There is the 2 letters that I sent to my specialists after my operation back in June. Detailing my current situation, pains and the bleeding. The first one she did not responded to. The second one was sent because I was suffering even more in pain and was still bleeding 2 months on since I started back in July.
http://healingemma.blogspot.com/2021/08/letter-to-miss-d-ghosh.html

http://healingemma.blogspot.com/2021/09/letter-to-miss-d-ghosh.html

 

If you would like any of these documents in paper form please let me know and I will get my partner to bring them in for you.

Thank you for your Co-operation in this matter and hope to hear from you soon.Mrs Emma Goode, 35 Archer Road, Redditch B98 8DN, 07383109492, 21/02/1990, emmasmith90@yahoo.com

CLICK TO OPEN FILE

Sunday, 17 October 2021

Emma’s Mother-in-Law Statement

This is statement from my Mother-in-Law from her perspective of my situation. She explains how I am still suffering after having my operation back in June. She also explains how my partner Stuart still doing everything for me as I am still not capable of looking after myself probably on a daily basis. She also does our food shopping 2 times a week to help us out.

She is very concerned about how I will never get back to the way I was before all of this has started and that probably the only thing that will help is to have an Hysterectomy, which is what I have been asking for from day one.

Emma’s  Mother-in-Law Statement

Although Emma had surgery to cut out much of the endometriosis she did not recover much – by the time she was recovering from the surgery it seems likely the endometriosis had grown again.

Emma has never recovered enough to walk without a crutch.   She is unable to take anything more than the shortest walk and is virtually house bound.

The only time she can get out is in my car as the family to not have a car and even in the car, she can only be taken somewhere she can sit. In 2021 she has been once to my house and twice to her son’s school by car.  On two occasions she has tried to walk to the school (about 15 minutes’ walk) and the effort has left her in severe pain for days.

Emma is not able to care for herself and struggles with any sort of household task.   Stuart has to complete all the household duties and take John to and from school.

I do the shopping for the family twice a week and take to the food house as Emma does not like to be left too long and is unable to care for herself when her pain is severe.

It seems likely that it will be years rather than months before she is eventually given the surgery that will alleviate the condition, i.e. a hysterectomy.   Until then she will be housebound and walking with crutches.

I am Emma’s partner’s mother and John’s grandmother.

Oonagh Morris

[[  address removed  ]]


Saturday, 16 October 2021

Pics of my Endo Belly











These are photos of my belly. This is what my belly looks like now after having a C-section, Ectopic Pregnancy and 2 surgeries to do with my Endometriosis. 

As you can see my belly has never gone down and it always look like I am pregnant. I am constantly in pain all across my belly and abdomen.

My Tramadol Prescriptions from the Chemist

This list below is the amount of times my partner Stuart has gone to the Chemist to pay and collect my Tramadol. I have 60 Tramadol every time. He also gets me Paracetamol and Ibuprofen at the same time.

This list is dated from 20th April 2020 to the present day. My partner used to go to the Chemist every 2 weeks for my Tramadol. It did ease bit after my operation back in June but it is now slowly going back to every 2 weeks.

This is never going to stop happening as I am in constant need for my Tramadol to help with my constant pains that I suffer every day.


Date                 Description                         Debit

20/04/2020 LLOYDS PHARMACY         9.15
28/04/2020 LLOYDS PHARMACY         18.3
11/05/2020 LLOYDS PHARMACY         9.15
21/05/2020 LLOYDS PHARMACY         9.15
02/06/2020 LLOYDS PHARMACY         9.15
26/06/2020 LLOYDS PHARMACY         9.15
29/06/2020 LLOYDS PHARMACY         9.15
16/07/2020 LLOYDS PHARMACY         18.3
30/07/2020 LLOYDS PHARMACY         14.14
03/08/2020 LLOYDS PHARMACY         18.3
11/08/2020 LLOYDS PHARMACY         9.15
24/08/2020 LLOYDS PHARMACY         9.15
27/08/2020 LLOYDS PHARMACY         9.15
14/09/2020 LLOYDS PHARMACY         9.15
08/10/2020 LLOYDS PHARMACY         9.15
22/10/2020 LLOYDS PHARMACY         18.3
26/10/2020 LLOYDS PHARMACY         9.15
10/11/2020 LLOYDS PHARMACY         11.15
30/11/2020 LLOYDS PHARMACY         11.15
15/12/2020 LLOYDS PHARMACY         11.15
31/12/2020 LLOYDS PHARMACY         12.94
15/01/2021 LLOYDS PHARMACY         13.14
01/02/2021 LLOYDS PHARMACY         15.62
15/02/2021 LLOYDS PHARMACY         9.15
15/02/2021 LLOYDS PHARMACY         12.47
01/03/2021 LLOYDS PHARMACY         18.62
15/03/2021 LLOYDS PHARMACY         13.15
29/03/2021 LLOYDS PHARMACY         18.62
15/04/2021 LLOYDS PHARMACY         19.31
29/04/2021 LLOYDS PHARMACY         18.06
11/05/2021 LLOYDS PHARMACY         22.55
07/06/2021 LLOYDS PHARMACY         10.85
21/06/2021 LLOYDS PHARMACY         17.33
05/07/2021 LLOYDS PHARMACY         16.53
11/08/2021 LLOYDS PHARMACY         18.82
26/08/2021 LLOYDS PHARMACY         7.98
03/09/2021 LLOYDS PHARMACY         18.34
24/09/2021 LLOYDS PHARMACY         14.13
15/10/2021 LLOYDS PHARMACY         11.84

CLICK TO OPEN FILE