Saturday 6th March 2021 – Emma’s Update Letter
In the last few weeks we have defiantly noticed a change in me. I am in pain more often (nearly all the time now). The pain literally feels like someone is constantly stabbing and pushing the knife in me more. It is always in my right side abdomen and in my belly. Sometimes the pain has been in my left side abdomen, my groin, and my pelvic and across my C section scar. The tablets do not work as well as they used to. I am in bed all day, every day. The pain that bad, it been reducing me to tears. There has been a couple of times where I have actually broken down crying due to the severity of the pain.
I am not sleeping like I used to. In the last couple of weeks I properly slept once the whole way through the night. I wake up every night in severe chronic crippling pain. I am a wake up to 4-5 hours a night. I wake my partner Stuart up 2 times in the night to do my hot water bottle, to empty my pee jug and for hot drink. The tablets I take during the night does not help with the pain at all. I am constantly in pain, it never goes away. By the time I fall back to sleep I have taken at least 3 lots of tablets. I sleep during the day to catch up on the sleep I missed in the night.
The pain never goes away now, even after taking Tramadol, Paracetamol, Ibuprofen and the pill. I always eat a piece of fruit when I am taking my tablets. I am now ordering a new prescription of the Tramadol every 2 weeks.
I am relying more on both of my crutches not just the one to walk around the house. I am now walking up and down the stairs one step at a time.
I can't bend down or over anymore because every time I do I always get a sharp stabbing pain come in to my right side abdomen. Even just bending forward slightly in bed kills.
I suffer from severe chronic stabbing pains even when I am just resting in bed. The pain get really uncomfortable. I am constantly groaning in pain every time I move about in bed to find a comfortable position. It hurts me to sit in bed with my knees bent up. It really kills me sometimes to get out of bed. I have to hold on the side of bed to help me get up.
Stuart has put a shelf up just above my bed to help me to get to the stuff I need all the time without having to move so much in bed or to get out of bed.
I struggle to sit in a chair or on the sofa for so long. I also struggle to stand for a certain amount of time.
The pain has gotten a lot worse since my last period. My last period was Monday 1st February - Sunday 7th February 2021. I hardly had a bleed. I was in scruating pain most of the time.
My belly constantly looks swollen and feels bloated. I look as though I am about 8 months pregnant. I sometimes feel like there's a lump in my right side abdomen. It is so sensitive to touch my right side abdomen.
Me and Stuart hardly ever have sexual intercourse now because of me being in constant pain all the time. Stuart is afraid of hurting me more.
Stuart does my hot water bottle more often now during the day and night. I am never without my hot water bottle now. He also empty's my pee jug every time he comes upstairs.
I've had no problems with my bladder or bowels. I have been keeping on the situation. Now and then I have severe chronic stabbing pains all across my abdomen while I have a bowel movement. The pain carry’s on afterwards. I have no pains while I am urinating in my jug. I am constantly peeing in my jug all day every day.
I don't have showers anymore as I struggle to stand for so long. I have baths now but even they are becoming more less now. In the last few weeks I've had a bath at least once a week. Everyday Stuart gives me a damp cloth for me to wipe myself down with. Stuart brings me the stuff for me to brush my teeth as I cannot stand or bend over at the sink in the bathroom.
I physically haven't been out of the house since Monday 5th October 2020. I went with Stuart to take our son to Nursery. I got halfway down there when I had to turn round to come back home due to the pain I was getting in my right side abdomen. It is a 15 minute walk to the Nursery from our house.
I snack most during the day. I have 1 main meal in the evening.
With this letter I have attached my pain diary, dating from January 1st to February 28th 2021.
Thank you for your co-operation
Emma Goode, 35 Archer Road, Redditch, B98 8DN. 07383109492. 21-02-1990. firstname.lastname@example.org.