Friday, 7 January 2022

Notes From Telephone Conversation with Surgeon


Notes from Telephone Conversation - Friday 7th January 2022


My Endometriosis Specialist Miss D Ghosh has just had a baby and is on maternity leave for the next 9 months.

Spoke to Endometriosis Specialist Dr Natalie Brice. She said she was on her own while speaking to us. Me and Stuart was there on speaker phone.

Pains not getting any better. Still bed ridden. Still using crutches around the house and when I am out and about. Please look at my diary or ask for more information.

Stuart told her about my website, which has got all my information on and my pain diary. Dr Brice mentioned that she is not allowed to look at my website, so we promised to send her all the latest information on my current situation.

Dr Brice mentioned the next step was pain medication but both me and Stuart said that is not an option for me at all as all the pain medication I have had in the past did me no good and I had really bad side effects to them. The only pain medication that has really helped me is Tramadol. I would like to try Oramorph as my sister is on this but I was refused it by my GP.

Dr Brice mentioned about an injection called Zoladex, which stops my ovaries from working all together and stops hormone production and helps with the pain of the Endometriosis. She said that if the pain I am suffering with is caused by my Endometriosis then this injection will stop it completely if not then the pain is not caused by Endometriosis. She explained how this injection has had 90-100% success rate with other patients. Dr Brice mentioned that I have the injection once a month for 3 months and it needs to be administered by my GP. Dr Brice also said that if the injection works then they might do a hysterectomy which is what I have been asking for from day 1.

I mentioned that since day 1 I wanted to have a Hysterectomy but Dr Brice was not inclined to do that has it might not solve the problem. Dr Brice mentioned that there was no notes on my file mentioning me asking for a Hysterectomy. There are 2 reason’s why I am asking for a Hysterectomy 1) because I have heard so many women saying that they have had the Hysterectomy and it helped a lot with the pain, some of them have even said that they go back to their normal life pain free. 2) I recently found out that my sister (4 years old than me) who also suffer with Endometriosis is going to be having a Hysterectomy within the next 3-4 months. She was offered the Hysterectomy as soon as they found out she had Endometriosis but she declined it because she wanted to have another baby. Now that she got a baby she is now having the Hysterectomy. Every time I have asked for the Hysterectomy, from day 1 I have always been told no and that I am too young to have it. I want to have the Hysterectomy because I do believe that it will be the best thing for me and it will definitely help with the pain.

I said I will need to do some research on the injection and look into it more before making up mind on whether to have it or not. If I decide to have the injection I would start getting it within 2 weeks.

Dr Brice mentioned that she was looking at photos on the computer while speaking to us on the phone and that everything looks normal apart from the Endometriosis.

Stuart asked if there could be anything else that could be causing my pains in my right side abdomen as all of the Endometriosis was found in my left side and in the middle of my abdomen. Dr Brice mentioned muscle pains. Stuart mentioned about hyenas and incisions.

Dr Brice mentioned about seeing a chronic pain specialist or a physiotherapist.

I asked about other scans that can been done to see if there is anything else going on, rule out other things and for my own peace of mind. Dr Brice mentioned that they could do an MRI Scan, which scans the whole body.

Stuart asked about seeing Dr Brice face to face and she said properly within the next 3-4 months would be best and it would be best to see her after I had the injections. We both agree to this decision.

Dr Brice said if I needed to get in touch with her, to email her through Miss D Ghosh’s secretary Stephanie Lloyd. I need to let her know what my decision is on the injection when I have made it and to send all of the paperwork.

Stuart asked her to send us notes on what we discussed on the call and she agreed to do so.




Gyno Hospital appointment letter

 Mrs EJ Goode 35 Archer Road REDDITCH B98 8DN

Your case note number is: 4440496393 Ser Your NHS numberis: 610 600 7306

Dear Mrs Goode 

We confirm the details of the outpatient appointment that has now been arranged for you to see a member of the Gynaecology Service.

 The professional lead for this clinic is Miss D Ghosh. Please arrive for this appointment no earlier than 5 minutes before your allotted appointment time and bring this appointment letter with you to the appointment.

Your appointment is Friday , 01/04/2022 at 10:00 hrs Clinic Location: CLOVER SUITE; LEVEL ONE Hospital Site: WORCESTERSHIRE ROYAL HOSPITAL . Please see details of the “hospital address on the reverse of the letter

It is important that you attend this outpatient appointment. If you fail to attend, it is likely that no further outpatient appointments will be made for you. 

Reminderto attend — we may automatically send you text messages to remind you to attend. If you do not wantthis to happen, please inform the clinic receptionist or your appointment booking coordinator

If you no longer need the appointment, orif you need to ask for another date or time, please contact the telephone number below. Please also let us know if your contact details change or if you change your GP. If your condition changes whilst waiting for your appointment please ensure that you contact your GP. If you have any special requirements please contact the relevant Ward/Department prior to attending the Hospital so that we can make reasonable adjustments. 

The contact number regarding this appointment is the Appointments Bureau on 01562 512312. The office is open Monday to Friday 8:15 am to 4:15 pm. 

We know that coming to hospital during the current COVID-19 pandemic might cause our patients some anxiety and worry. 

We wantto reassure you that the NHS is here for you and we have your safety in mind. We have made some changes to our hospitals to reduce the risks so if you have visited before, you might find things are different

 Please don’t come to the hospital if you are unwell with the symptoms of COVID-19 and can answer yes to either of the questions below, or if by government guidance you should be self-isolating. 

If this means you will not be able to attend your appointment, please call the number on your letter and we can rearrange it or we may be able to carry out your appointment by phone or video link.. 

In the last 14 days, have you been diagnosed with COVID-19 or been in close contact with someone diagnosed with COVID-19? 

Have you or any of your close contacts developed any of the following new symptoms in the last 14 days?

A new continuous cough 

A high temperature 

A loss of, or change in, your normal sense of taste or smell (anosmia) 

If this means you will not be able to attend your appointment, please call the number on yourletter and we can rearrange it or we may be able to carry out your appointment by phone or video link. 

Please follow the instructions regarding hand hygiene and face mask when you arrive at the hospital. 

If your appointment letter says you can bring a visitor to your appointment, please do so if you wish. If this is not specified in your letter, please do not bring visitors with you if at all possible. 

If you do need help coming to the hospital, ideally the person accompanying you should be from your household. We ask that your visitor leaves you in the waiting area and waits elsewhere, if this is possible.

Yours sincerely
Appointments Co-ordinator
On behalf of Gynaecology Service